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Flashcards in Care of adolescents with chronic conditions Deck (17):

What is the prevalence of chronic health conditions or special health care conditions in youth in North America?



What is interdependence?

Recognizing and distinguishing from each other situations in which one needs to rely on others and situations in which one needs to rely on oneself


What factors make separation and independence more difficult for adolescents with chronic conditions and their parents?

1. Need for treatment
2. Parental overprotection
3. More youthful physical appearance
4. Limited physical freedom


What does the AAP recommend re: independence?

Children with disabilities, regardless of the cause, should be encouraged to develop the highest level of independence based on a realistic and objective evaluation of their abilities and limitations


What factors make it difficult for adolescents with chronic illnesses to maintain friends?

1. Hospitalization
2. Frequent appointments
3. Restriction - inherent to the condition and those imposed by parents and others
4. Teasing for being different


What school and work problems are present in youth with chronic health conditions?

1. Absenteeism
2. Problems with vocational planning
3. Problems with economic support
4. Problems with physical activity


What is the unemployment rate in adults with disabilities?

50-75% compared to 5% in the general population


What should physicians do regarding concerns re: physical appearance?

Anticipate issues and address them early. Address concerns with delayed growth and pubertal development. Consider professional advice about hair, clothing, and makeup.


What should physicians do re: sexual health?

Provide appropriate counselling and screen for sexual health concerns. Explain any specific fertility, pregnancy and sexual health concerns related to their condition.


What are the goals of providing health care to youths with chronic health conditions?

1. optimal medical control
2. adolescent involvement in management of the health condition
3. adolescent and family understanding of the health condition
4. acknowledgement of personal potential for activity, education, recreation, and functioning
5. completion of adolescent developmental tasks
6. the attainment of self-esteem and self-confidence
7. the acknowledgement of personal potential for a vocation or career


What are the benefits of educating adolescents about their disease?

1. learn how to avoid situations that exacerbate their condition
2. learn how to minimize the severity of an exacerbation
3. learn self-care skills to minimize the daily effects of their illness


What are recommendations regarding transition to adult care?

1. Pediatricians should be flexible and take developmental age into consideration
2. Ensure that the transition is continuous, comprehensive and coordinated both to minimize disability and promote appropriate use of health care services
3. Discussions about transition should start between age 10-12y


What should pediatricians recommend to parents?

1. Strike a balance between parental supervision and increased control of care by adolescent
2. Help recognize and accept safe forms of self-expression because adolescents often achieve autonomy by engaging in behaviors that parents may perceive as dangerous


What should physicians recommend regarding school?

1. Help teachers understand the health condition
2. Facilitate integration into the school program
3. Help parents have realistic academic expectations


What should physicians assess related to pain control?

Must assess issues as pain may be underestimated and not treated appropriately. Especially true for SCA, JIA, and neuromuscular conditions.


What are the recommendations regarding hospital based care?

Should be adolescent friendly and support developmental issues


What other recommendations are present for physicians?

1. Must be knowledgeable about legal regulations and aspects of consent and confidentiality in their province
2. Physicians must be informed about organizations that can provide support to adolescents and their family
3. Facilitate access to needed services in the community
4. Foster broader community responsibility for the chronically ill
5. Be community educators and advocates

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