PSY2004 SEMESTER 2 - WEEK 7 Flashcards
(43 cards)
why is co-production v important
not good practice to make assumption, test and publish without input from population research focuses on
not doing this contribute to “social disenfranchisement”
whats social disenfranchisement
conventional research provides too few opportunities for genuine engagement with autistic people, contributing to “social disenfranchisement”
define co-production
process of conducting research in partnership with population you are focusing on
name 4 phases in co production
consultation, involvement, participation, co-production (consulations at bottom, then up)
in co-production outline consultation
asked for opinion, perspective, idea, concern however isn’t formal involvement (focus group, questionnaire)
in co-production outline involvement
take active roles, more input in decision making, agenda largely defined, led by clinician
in co-production outline participation
take part in defined activity like adding to agender or design of research
in co-production outline coproduction
equal collaboration between clinicians and indiv, involve joint decision-making on goal, process, outcome
what was impact of Covid-19 on DOwn syndrome
adults 40+ 4x hospitalise, 10x likely die
reduction in disability program = cannot benefit from telehealth/virtual service and reduced activity damaged mood, behaviour regulation
what did caregivers of DS say was impact on MH of DS
1/3 more irritable, easily anger
52% anxious
41% depressed
what happened with NICE guidelines and Covid-19, regarding DS
publish scale of who prioritised if services cut - those needing living support (LD) not prioritised, meaning issued DNR which still some not revoked
what did Bobo (2020) find regarding french ADHD parents from negative impact of covid-19
behavioural issues, anxiety and violence
disrupt sleep pattern, emot disturb
stressed over homeschol
struggle w/ lack socialising
motor restlessness, tics, noisess
what did Bobo (2020) find regarding french ADHD parents from positive impact of covid-19
improved self-esteem + peace
reduce anxiety, stress= calm
reduce distrac, allow better homeschooling, no timing to stick at
better apprec child difficulty
less agitat
in Bobo (2020) what % were best/worsen behaviours
34.71% reported worse however 30.96% reported overall improved behaviour
what is role of genetics and family for ASC
high co-occurrance for MZ over DZs
first degree relatives increased beh/cog feature - broader autism phenotype
often co-occur with genetic condition (sotos, fragile X, 16q11.2)
what are concordance rates of autism
MZ 77%, DZ 31%
whats broad autism phenotype
behavioural features assoc w/ ASC - social interaction, friendship, pragmatic + speech
compare multi-incidence of autism families (MIAF), single incidence of autism family (SIAF) and DS child (control) for broad autism phenotype
MIAF & SIAF showed increase in ASC related features= provide evidence for Broad Autism Phenotype + evidence for genetic origin of ASC
what cause sotos syndrome
- overgrowth syndrome 1/14,000
- deletions on chromosome 5, involve NSD1 gene
what is diagnostic criteria on sotos syndrome
overgrowth with advanced bone age, macrocephaly, characteristic facial appearance and intellectual disability
using social responsiveness-scale, what % ppts score above clinical cut offs for ASC
83%
how much of autism believed by genetic abnormality
only 10-20% ASC genetic abnormality
likely interac btw/ gene, with over 100 diff gene strongly link to ASC
define environmental epidemiology
observation of human population to infer environmental causes of a condition, disease
give an example of bad science 1998
MMR (1998), 12 children, media frenzy
caused global increasing measles, lacking trust on research on environmental ASC causes, followups with no evidence
