W2-T3 Evaluating Service user involvement

Question 1

What are the outcomes of using experts by experience (i.e. service user) in service delivery

Answer 1

1. broadly shifting political spectrum with consumerism and pragmatism – notably tackling stigma
2. despite being included in 40% random selected projects, great variation in input and impact was seen (problem: lack of time, resources, absence of a shared practical definition of service user involvement

Question 2

what are the barriers perceived in service user involvement

Answer 2

increased the amount of time taken to carry out and write up the project

incurring financial costs for user consultation payments and dissemination

Question 3

what are the benefits of service user inclusion according to Ennies & Wykes 2013 and the Mental Health Research Network database

Answer 3

democracy and empowerment of service users

identification and prioritisation of relevant research topics

eliciting richer data because participants were more
ready to share personal and stigmatising information

service user involvement is required and recommended by increasing numbers of funders

the generation of representative and robust
findings

evidence that user involvement increases the likelihood of a study’s success

Question 4

define three service user involvement within INVOLVE continuum

Answer 4

consultation (research initiated)
collaboration (jointly initiated)
user control (user initiated)

Question 5

define SURE model

Answer 5

SURE model is uncommon - more research occurs outside mainstream academia

project-specific consultative basis

expectations and objectives are agreed beforehand

Question 6

what is INVOLVE

Answer 6

a national advisory group that supports greater public involvement in NHS, public health,
and social care research.

—- funded by and part of the National Institutes of Health Research

Question 7

why INVOLVE was created

Answer 7

It was created in 1996 to promote public involvement in NHS, public health, and social care research

Question 8

What the critic says about INVOLVE

Answer 8

‘recent interest in service user knowledge is part of broader pressure from funding bodies to increase user involvement

(since 2005, details of involvement are required by funding bodies and NHS ethics committees.

Question 9

define other current concerns in regards to service user movement

Answer 9

the names and views of certain populations are liable to be overlooked or neglected
–> Lack of voice/support from minorities

Question 10

what Peter Beresford recommendation to challenge the imbalance

Answer 10

ongoing review and evaluation of organisational policies, processes, procedures, and practices, including
who is being included and excluded

an organisational commitment to and training in the equality of opportunities

specific strategies for involving excluded groups and imaginative ways of working together

clarity on the issue of representation, i.e. who is speaking for whom - this is of particular importance when engaging with minority groups within minority groups

evaluation of participation to assess how inclusive and
diverse it is