[2] RA 9288

Question 1

Also known as the Newborn Screening Act
of 2004

Answer 1

RA 9288

Question 2

Simple procedure to find out if a baby has a
congenital disorder that may lead to mental
retardation or even death if left untreated

Answer 2

Newborn Screening (NBS)

Question 3

The _____________ acts as the lead agency in the implementation of the law and collaborates with other National Government Agencies (NGA) and key stakeholders to ensure early detection and management of several congenital metabolic disorders.

Answer 3

Department of Health (DOH)

Question 4

What are the Six disorders of the Newborn Screening program

Answer 4

1. congenital hypothyroidism (CH)
2. congenital adrenal hyperplasia (CAH)
3. phenylketonuria (PKU)
4. glucose-6-phosphate dehydrogenase (G6PD)
   deficiency
5. galactosemia (GAL)
6. maple syrup urine disease (MSUD)

Question 5

Administrative Order No. __________: National Policy and Strategic Framework on Expanded Newborn Screening for
2017-2030

Answer 5

Administrative Order No. 2018-0025

Question 6

Administrative Order No. ________ or the Guidelines on the Implementation of the Expanded Newborn Screening Program

Answer 6

Administrative Order No. 2014-0045

Question 7

Expanded screening includes 22 more disorders: _______ and ________

Answer 7

Hemoglobinopathies and Metabolic Disorders

Question 8

Six operational NSCs in the country

Answer 8

1. NIH at the University of the Philippines Manila
2. Visayas located at West Visayas State
   University Medical Center, Iloilo City
3. Mindanao located at the Southern Philippines
   Medical Center, Davao City
4. Central Luzon in Angeles City, Pampanga
5. Southern Luzon in Tanauan City, Batangas
6. Northern Luzon in Batac City, Ilocos Norte

Question 9

When is it done: Ideally done immediately after ____ hours from birth

Answer 9

24 hours

Question 9

How is it done: A few drops of blood are taken from the baby’s heel, blotted on a special absorbent filter card and then sent to ______

Answer 9

Newborn Screening Center (NSC)

Question 9

Who collects the sample for Newborn Screening

Answer 9

1. Physician
2. Nurse
3. Medical Technologist
4. Trained midwife

Question 10

Proclamation No. 540 dated ____________ entitled “Declaring the 1st Week of October of Each Year as “National Newborn Screening Week”

Answer 10

January 20, 2004

Question 11

National Newborn Screening Week is when

Answer 11

1st Week of October

Question 12

National Newborn Screening Week is approved by

Answer 12

President Gloria Macapagal-Arroyo

Question 13

How many sections does RA 9288 have

Answer 13

19 sections

Question 14

RA 9288 was approved on

Answer 14

April 7, 2004

Question 15

What is Section 1

Answer 15

Title

Question 16

What is Section 2

Answer 16

Declaration of Policy

Question 17

What is Section 3

Answer 17

Objectives

Question 18

What is Section 4

Answer 18

Definition

Question 19

What is Section 5

Answer 19

Obligation to Inform

Question 20

What is Section 6

Answer 20

Performance of Newborn Screening

Question 21

Under Section 6, shall be performed after ____ hours of life but not later than three (3) days from complete delivery of the
newborn

Answer 21

24 hours

Question 22

Under Section 6, newborn that must be placed in intensive care in order to ensure survival may be exempted from the 3-day requirement but must be tested by _____ days of age

Answer 22

7 days

Question 23

What is Section 7

Answer 23

Refusal to be Tested

Question 24

True or False: A parent or legal guardian may refuse testing on the grounds of religious beliefs, but shall acknowledge in writing their understanding that refusal for testing places their newborn at risk for undiagnosed heritable conditions.

Answer 24

True

Question 25

What is Section 8

Answer 25

Continuing Education, Re-education and Training Health Personnel

Question 26

Who shall conduct continuing information, education, re-education and training programs for health personnel on the rationale, benefits, procedures of newborn screening;

Answer 26

DOH with the assistance of the NIH

Question 27

Who shall disseminate information materials on newborn screening at least annually to all health personnel involved in material and pediatric care

Answer 27

DOH with the assistance of the NIH

Question 28

What is Section 9

Answer 28

Licensing and Accreditation

Question 29

The ________ and the ________ shall require health institutions to provide newborn screening services as a condition for licensure or accreditation

Answer 29

DOH and Philippine Health Insurance Corporation

Question 30

What Section 10

Answer 30

Lead Agency

Question 31

DOH shall establish the ______ on Newborn Screening

Answer 31

Advisory Committee

Question 32

Develop the implementing rules and regulations for the immediate implementation of a nationwide newborn screening program within _____ days from the enactment of this Act

Answer 32

180 days

Question 33

What is Section 11

Answer 33

Advisory Committee on Newborn Screening

Question 34

Under Section 11, to ensure sustained inter-agency collaboration, the Advisory Committee on Newborn Screening is hereby created and made an integral part of the ________

Answer 34

Office of the Secretary of the DOH

Question 35

The Advisory Committee on Newborn Screening is reviewed ______ and recommended conditions to be included in the newborn screening panel of disorders

Answer 35

Anually

Question 36

Review and recommend the newborn screening fee to be charged by

Answer 36

Newborn Screening Centers

Question 37

Under Section 11, how many are the members of the committee

Answer 37

8 members - Chairman: Sec of Health - Vice-chair: Executive Director of the NIH - Undersecretary of the DILG - Executive Director of the Council for the Welfare of Children - Director of the Newborn Screening Reference Center - 3 representatives appointed by the Secretary of Health

Question 38

Who are the 3 possible representative appointed by the Sec of Health

Answer 38

1. Pediatrician 2. Obstetrician 3. Endocrinologist 4. Family physician 4. Nurse 5. Midwife from either public or private sector

Question 39

The 3 representatives shall be appointed for a term of ____ years

Answer 39

3 years

Question 40

The committee shall meet at least ____ a year

Answer 40

twice or 2 times a yeat

Question 41

The ____ shall serve as the Secretariat of the Committee

Answer 41

NIH

Question 42

What is Section 12

Answer 42

Establishment and Accreditation of Newborn Screening Centers

Question 43

Under Section 12, who qualify staffs for Newborn Screening Centers

Answer 43

NIH

Question 44

Under Section 12, submit to periodic announced or unannounced inspections by the _______ in order to evaluate and ensure quality Newborn Screening Center performance

Answer 44

Reference Center

Question 45

What is Section 13

Answer 45

Establishment of a Newborn Screening Reference Center

Question 46

What is Section 14

Answer 46

Quality Assurance

Question 47

What is Section 15

Answer 47

Database

Question 48

TRUE OR FALSE: NIH Newborn Screening Reference Center shall maintain a national database of patients tested and a registry for each condition

Answer 48

True

Question 49

Under Section 15, submit reports annually to the ______ and _____on the status of and relevant health information derived from the database

Answer 49

Committee and to the DOH

Question 50

What is Section 16

Answer 50

Newborn Screening Fees

Question 51

At least _____ to the DOH's Centers for Health Development or its future equivalent to be spent solely for follow-up services, education and other activities directly related to the provision of newborn screening services

Answer 51

4 percent

Question 52

What is Section 17

Answer 52

Repealing Clause

Question 53

What is Section 18

Answer 53

Separability Clause

Question 54

What is Section 19

Answer 54

Effectivity

Question 55

TRUE OR FALSE: Under Section 16, 4% should be allocated to each DOH centers, newborn screening centers, and NIH newborn screening reference center

Answer 55

True