5 Patient-based Outcomes Flashcards

1
Q

Why are patient-based outcomes important?

A

Can be a useful measure of healthcare

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2
Q

Why measure health?

A
Indication of need
Resource Allocation
Assess effectiveness of interventions
Evaluate the quality of health services
Improve value for money
Monitor patients' progress
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3
Q

What are commonly used measures of health?

A

MORTALITY
MORBIDITY
PATIENT-BASED OUTCOMES

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4
Q

Pros/Cons of using mortality as a measure of health

A

Pros
Easily defined
Not always accurately recorded

Cons
Not a very good way of assessing outcomes other than life/death and not a good measure of quality of care

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5
Q

Pros/cons of using morbidity as a measure of health

A
Pros
Routinely collected
(HES Data)
Cons
No info about patient experience
Not easy to use in evaluation
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6
Q

What are patient based outcomes?

A

Attempt to assess wellbeing from the patient’s point of view
e.g. HRQoL is a patient based outcome
Compare scores from before and after treatment

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7
Q

What is a PROM?

A

Patient Reported Outcome Measure- used a lot in literature. Measures of health directly from patients.

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8
Q

Why is there a growing use of Patient-based outcomes over mortality and other data?

A

Mortality tells you nothing about the quality of care for over 90% of procedures, where death is not a possibility. Just because less people die does not mean it is a superior treatment.

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9
Q

What can patient based outcomes be used for?

A

Used:

  • Clinically
  • To assess cost-effectiveness
  • In Clinical Audit
  • Measure health status of population
  • Measure of service quality
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10
Q

Why introduce PROMS?

A

Improve clinical management

Compare provider trusts

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11
Q

What is the indicator used to measure quality of life for people with long term conditions?

A

HRQoL

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12
Q

What is NHS Englands PROMS programme? What procedures does it cover?

A

Hip replacements
Kneee replacements
Groin hernias
Varicose veins

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13
Q

What happens to collected PROMS data?

A

Published
Allows comparison between NHS providers
Of interests to patients in decision making

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14
Q

Define HRQoL

A

Functional affect of an illness and its consequent therapy on a patient, as perceived by the patient.

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15
Q

What factors do patients think about when considering their QoL?

A
  1. Losses of physical function e.g. mobility
  2. Symptoms e.g. nausea
  3. Perception of what health means - negative, positive or functional
  4. Psychological wellbeing e.g. anxious
  5. Social wellbeing - relationships, integration
  6. Cognitive function e.g. alertness, memory
  7. Personal constructs e.g. satisfaction with appearance
  8. Satisfaction with care

Think about these measure when choosing which tool to use to calculate HR-QoL

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16
Q

How do we measure HR-QoL

A

QUALITATIVELY OR QUANTITATIVELY

17
Q

When are qualitative methods of measuring HRQoL best used?

A

Used best in diseases we understand well

18
Q

When are quantitative methods are used for measuring HRQoL

A

Relies on use of questionnaires

Ensure the VALIDITY and RELIABILITY

19
Q

How can you be sure of the VALIDITY and RELIABILITY of your chosen survery?

A

Use a published survey

20
Q

What is a quantitative instrument?

A

A SURVEY

21
Q

What are GENERIC and SPECIFIC instruments?

A

GENERIC instruments can be used for any population. Can be used for a broad range of health problems and in the absence of a SPECIFIC instrument. Can be used to find UNEXPECTED effects of a treatment. BUT, they gather LESS DETAIL and can be TOO GENERAL.

SPECIFIC instruments are specific to a certain disease and ask related questions.

22
Q

Name 2 examples of a generic instrument

A

EQ-5D

SF-36 (most commonly used)

23
Q

What is a major difference between SF-36 and EQ-5D?

A

EQ-5D achieves a single score between 0 and 1. 1= full health, 0 = dead

24
Q

Why would you use EQ-5D vs SF-36

A

If using the data for cost-utility analysis e.g. to calculate QALYs, as it yields a single numerical score.

25
Q

What areas can SPECIFIC instruments cover?

A

Specific disease, specific site, specific dimension

26
Q

Pros of specific instruments?

A

MORE SENSITIVE TO CHANGE

MORE ACCEPTABLE TO PATIENTS (feels more relevant)

27
Q

What is an example of a specific instrument?

A

Oxford Hip Score

28
Q

How would you choose an instrument?

A
Valid?
Reliable?
Suitable for area of interest?
Sensitive to change?
Acceptable to Patients?
Easy to administer and analyse?