Chapter 7 Flashcards

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1
Q

What is cancer?

A

Abnormal, uncontrolled multiplication of cells

Cancer staging: Refers to how far the cancer has spread in the body.

Three important factors:
The invasiveness of the tumour
Presence or absence of lymph node involvement
Presence or absence of distant metastases [Metastases is the process where cancer cells travel through the blood or body tracks to more distant parts o the body. I.e., breast cancer in the lungs, bone, and brain metastases]

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2
Q

Health disparities in Cancer with Canada

A

In Canada, Black, Indigenous, and people of colour are less likely to receive health care equal to that received by White people due to racism and discrimination; this extends into worse cancer detection, diagnosis, and treatment (Ahmed & Shahid, 2012).

Indigenous peoples receive less optimal cancer care and show worse survival rates after a diagnosis of cancer (Marrett, Hones, & Wishart, 2003)

Screening for cervical, breast and colorectalcancer has been shown in population based research to be consistently lower among immigrants and among people in the lowest income quintile (Lofters et al., 2018)

Lung cancer incidence is highest in people in low income groups, and lower education (Hajizadeh, Johnston, & Manos, 2020)

[Action is required in screening, diagnosis and treatment.
With respect to poverty, rural locations, and cultural barriers.
We need more integration of person centered, time efficient quality care with navigational support]

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3
Q

Typical treatment options for cancer

A

No single treatment is effective for all types of cancer. A combination approach may be needed.

Surgery

Radiation therapy: Destroys cells that divide rapidly.
Side effects: fatigue, weakness. Can also cause secondary cancers at a much later time. (Radium: is the discovery would allow destruction of rapidly multiplying cells)

Chemotherapy: Works by blocking metabolic processes involved in cellular division, and although it preferentially destroys cancerous cells, also damages healthy tissue.
Side effects: hair loss, nausea, ulcers, sleep problems
Might be primary or adjuvant [means that it is an axillary treatment that helps another one]

  • Common to have surgery first, than chemo adamant.
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4
Q

Conventional Medicene

A

Explanations of health and illness are based on:

Empirical evidence and objective data

Logic and facts

Parsimony: Explaining health phenomena by the use of fewest causes. Also known as Occam’s razor. (Parsimony is the simplest solution which is also tends to be the right one in medicine –> Occam’s razor (the razor refers to cutting out the unnecessary explanations)

Rigorous evaluation of explanations through science
Explanations are tentative so we can be open to new or better evidence

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5
Q

Complementary and Alternative Medicine (CAM)

A

Diverse set of therapies, products, and healing philosophies. Also known as “integrative medicine.”

Mind-body interventions
Systems-oriented approaches
Manual healing methods

Take the person in as a whole account, not just a recipient of conventional medical system.

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6
Q

Mind-body Interventions

A

Psychotherapy and support groups
Meditation
Imagery/visualization (can help with side effects, like hot flashes, anticipatory nausea and vomiting from chemotherapy)
Yoga, dance therapy, other movement therapies
Music therapy and art therapy
Prayer

1) Carlson et al. relaxation and imagery helped depressed mood, and showed small decrease in anxiety and stress, reduced nausea and vomiting,
Mediation and yoga showed good improvements for cancer patients with stress and anxiety and improved fatigue.
2) Art therapy was examined in a 5 year minimized control trial  control or therapy
It showed reduced anxiety, and depression while also increasing better quality of life. (in early stages of study)

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7
Q

System-orientated approaches

A

Traditional Chinese medicine
Acupuncture and acupressure
Herbs
Cupping
Moxibustion (burning of mugwort)
Naturopathic medicine
Diet/nutritional approaches
Community-based practices
Ayurveda
Homeopathic medicine

Community based practices –> sweat lodges (indigenous), or Latin American Codon Dotty Small healers
Homeopathic –> remedies create symptoms that are similar to the patient may be experiencing (i.e., nausea) but it is in tiny does and the remedies are very very diluted which have a curative effect

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8
Q

Manual Healing Methods

A

Osteopathic medicine
Chiropractic treatment
Massage therapy
Biofield therapeutics
Reflexology
Other types of body work: Feldenkrais method, Trager method
Bioenergetics

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9
Q

Culture and treatment approaches

A

Conventional medicine often see CAM as “alternative” instead of an integrative approach

For many cultural groups, CAM treatments are not alternatives, but primary treatments

In a review of Indigenous people with cancer, use of traditional medicine was common alongside conventional cancer treatment and was associated with spiritual, emotional and cultural benefits (Gall et al., 2018)

Health care providers need to be respectful when engaging in conversations about treatment options and use of CAM and traditional medicine

Indigenous treatment review in Australia, Canada and the US.

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10
Q

Other alternative treatments “unorthodox treatments”

A

Treatments that the conventional medical establishment considers unproven or potentially harmful (i.e., apricot pits, shark cartilage; but those are commonly used in other cultures)
Until recently, medical marijuana was considered alternative
Interesting link, for your interest on efficacy of medical marijuana for a variety of chronic medical illnesses, including cancer, from Washington DC:

Common medicine comes from plants i.e., penicillin comes from mold.
Medical marijuana has shown to reduce nausea, pain, appetite loss, and anxiety in people with cancer
Recent reviews show moderate quality evidence for pain reduction.

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11
Q

The placebo effect

A

A positive outcome to a treatment that a person believes to be an effective therapy
Expectations have a profound effect on healing
Complicated, because patients are supposed to provide informed consent to all treatment, so it’s difficult to tell someone it’s “just a placebo.”

Placebo substances can have known therapeutic actions but not for the illness or disease in question
Believing in a treatment can be just as effective as a treatment

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12
Q

Intercessory Prayer

A

This is when someone else prays for you.

In studies, ill patients have been randomized to being prayed for versus not being prayed for.

In one study, those who received prayer had fewer illnesses due to AIDS, less frequent doctor visits, and fewer days in the hospital (Sicher et al., 2008)

But when studies are examined all together, no significant effect of prayer on death rates or health, across a number of illnesses. (Only Individual studies have had an effect)

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13
Q

Ways of coping

A

Various coping strategies may be employed to achieve different purposes when facing life-threatening illness
Emotion-focused coping
Problem-focused coping
Meaning-based coping

 Dynamic and static –> people use multiple coping strategies

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14
Q

Problem and focused coping

A

These are strategies focused on taking action and establishing a sense of control
Manage the problem causing distress
In the face of illness, seek information about diagnosis and determine options for treatment; living with illness and the prognosis

Hallmark: pursuit of personal and meaningful goals

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15
Q

Emotioned focused coping

A

These are strategies focused on changing one’s emotional reaction to life threatening illness
Examples:
Talking to someone who understands your feelings
Seeking support and reassurance
Distraction

Distraction as a way to gain some distance from emotions

Hallmark: regulates their level of distress, escape the impact of the stressful stions through distancing or reframing
Denial

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16
Q

Meaning based coping

A

These are strategies that help to find some benefit in the distressing situation
Sense that illness could change one’s life for the better
Helps maintain perspective and positive well-being
People may turn to spiritual beliefs for insight

Give up their specific goals that are no longer achievable and find new ones.
Illness could change our lives for the better
Religion turned to, or develop new spiritual beliefs.
The best of a bad situation

17
Q

Fighting spirit

A

In the cancer literature, “fighting spirit” is defined as the belief in one’s ability to (Nelson et al., 1989): fight back from cancer conquer cancer
recover from cancer
The attitude “I am determined to beat this disease.”

Two small studies reported fighting spirit was associated with increased survival from cancer

However, a much larger review of several studies showed it was not associated with increased chances of survival in cancer (Pettigrew, Bell & Duncan, 2002)

 Associated with better quality of life, and greater spiritual being.

18
Q

Tyranny of positive thinking

A

Cancer and the not so positive power of positive thinking’

Popular media promotes the idea that the only way to ”beat” cancer is through being positive

Attitude of others make people with cancer feel judged and blamed, especially if the cancer recurs

No scientific evidence that only positive emotion through cancer helps with survival
“Your fault that the cancer came back because you weren’t positive enough”
Unsolicited advice, isolation.

19
Q

Ken Doka: Task in coping with life-threatening illness (Acute Phase: Diagnosis)

A

1) Understand the disease
2) Maximize health and your lifestyle
3) Optimize coping strategies
4) Develop strategies to deal with issues caused by the diagnosis and illness
5) Explore effect of diagnosis on self or others
6) Express feelings and fears
7) Integrate present reality into sense of past and future

20
Q

Ken Doka: Chronic phase living with illness

A

1) Manage symptoms and side effects
2) Carry out health regimens
3) Manage stress and use coping behaviors
Normalize life to the extent possible in face of illness
4) Maximize social support and preserve sense of self
5) Express feelings and fears
6) Find meaning in uncertainty and suffering

21
Q

Ken Doka: Terminal Phase: Impending death

A

1) Manage discomfort, pain, incapacitation, symptoms
2) Cope with institutional stress
3) Manage stress and use coping behaviors
Prepare for death and say goodbye
4) Sustain sense of self and relationships with others
5) Express feelings and fears
6) Finding meaning in life and in death

22
Q

Ken doka’s two additional stages

A
  1. Prediagnostic Phase: During which the person suspects the illness and may seek medical attention. Coping focused on managing uncertainty
  2. Recovery Phase: Following the cure or remission of a previously life-threatening illness. May also focus on managing uncertainty
23
Q

Elizabeth Kubler-Ross: Stages of Dying

A

Denial (shock and disbelief): The person is unable to admit that their medical condition is terminal and that death is forthcoming.
Anger: The pain of loss is projected onto others
Bargaining: Attempts to avoid the inevitable; ”strike a deal”
Depression: The reality of imminent death hits home.
Acceptance: An individual comes to the reality of forthcoming death and makes preparation accordingly.

Most famous theory in death and dying and bereavement
Acceptance implies that they accept their mortality in a positive way –> not giving up.

24
Q

Criticisms of Kubler-Ross

A

The stages were discussed in detail in her book “On Death and Dying” (1969).
Stages based on interviews with 200 adult patients during a period of about 3 years.
The stage theory has also been applied to divorce and grief. It can address any loss.
Kubler-Ross acknowledged that people can go back and forth among the various stages, and may experience the different stages at the same time.

One of the criticisms is that not everyone goes through each stage –> not mutually exclusive or linear –> some can get suck in one stage or not experiencing all of them.

25
Q

Awareness of dying: interaction patterns

A

Closed awareness
Suspected awareness
Mutual pretense
Open awareness

26
Q

Closed awareness context

A

The patient is unaware of their impending death, although others may know.
The family tends to not talk about the person’s illness or the fact that they will die.

Hallmark: lack of communication about the person’s illness or their process or the prospect of their death

27
Q

Suspect-awareness context

A

The dying person suspects their prognosis and may try to confirm or deny suspicions by asking others. Those who know do not verify this suspicion.
Despite this secrecy, the patient sees that communication has broken down regarding their illness and perceives others’ anxiety, so their suspicion is confirmed.

28
Q

Mutual Pretense Context

A

Everyone, including the patient, recognizes that death is going to happen, but everyone behaves as if it will not.
All of this may go on until the day the patient dies, even when the “unspoken rules” get broken occasionally that may reveal the terminal prognosis.

Distancing strategies help preserve the illusion that the person is not actually terminally ill (they are though)

Short term

The family sidesteps direct communication about dying, and can do so right up until their last moments.

Avoid talking about the illness.

If the information leaks out, family resists it  shuts down conversation, leaving the room, avoiding the topic.

29
Q

Open-awareness context

A

Death is acknowledged and discussed, allowing for the possibility of shared support.

Shared support –> hallmark (the other three don’t have this)
Awareness contexts can shift –> mutual pretense to awareness

30
Q

Isolation and confinement of the dying

A

Being sick can remove people from the things that give life meaning and purpose: family, friends, job. This is social disengagement.

People with cancer have stories of needing to use disposable silverware or having people refuse to share food with them.

People are afraid to “catch cancer”; the contagion idea is even worse for people living with HIV virus.

 Stigma due to these conditons

31
Q

“The Sick Role”

A

When people get diagnosed with a serious medical illness, they can be expected by their families to acquire the “sick role”.

For example, patients expected by their loved ones to keep seeking more treatment and “get better,” even though doing so prolongs the active dying phase.

How does this apply to the Terry Schiavo case that we talked about in earlier lectures?

32
Q

The dying trajectory

A

Trajectory 1: Short period of evident decline. Typical of cancer.Reasonably predictable w steady decline
Time to anticipate palliative care needs and end of life are

Trajectory 2: Long-term limitations with intermittent serious episodes. Typical of heart failure and respiratory illness. Gradual decline, with acute deuteration with recovery, sudden death.

Trajectory 3: Prolonged decline with gradual disability and generalized failure of multiple systems. Typical of Alzheimer’s or other dementia, generalized frailty of multiple body systems. Prolonged decline, with gradual disability and then generalized failure of multiple systems
–> I.e., stroke too. (Not everyone that has strokes –> a fatal stroke)

Active dying is the very end of life (Active dying: lasts hours or a couple of days)
Signs: Loss of appetite, excessive fatigue and sleep, increased physical weakness, social withdrawal. Terminal restlessness –> agitated muscle movements

May also see confusion, difficulty or noisy breathing, loss of control over bowel and bladder.

Remind the person of what time, what day it is, who is with them, rest their head up, never assume they can’t hear you. Be gentle.

33
Q

What is a legacy of leaving a legacy Movie

A

Leave life story for one’s family

Leave a personal message for a spouse, young children, or grandchildren

Recollect and review the worthwhile memories of a lifetime, which distracts from the present circumstances and helps validate oneself

Can be official (with a company) or unofficial (on your own).
Everyone wished they had a memory of their parent.