Exam 3 Flashcards
Managing Physiologic Responses to Terminal Illness
-Pain:
Establish a regimen of analgesics to provide optimal pain relief
-Dyspnea:
Treat underlying pathology, monitor response, manage anxiety, conserve energy
-Nutrition and Hydration:
Anorexia vs. cachexia
Family may want to make their favorite meal, and the patient doesn’t like it.
-Delirium:
Treat underlying factors contributing to delirium
Change in the last 24 hours that is drastic. (Change in medications, infections, electrolytes that are off). Correctible problems, need to have it treated.
-Depression:
Emotional, spiritual and medical support
Dying
-Some people decline gradually others go quickly
-There are changes you can expect to see as the body stops working.
-Children and teens can stay fairly active until near the end.
-1 to 3 months before death:
Sleep or doze more
Eat and drink less
Withdraw from people and stop doing things they usually do
Talk less or at times need to talk more
What is seen 1 to 2 weeks before death?
- May feel tired or drained all the time and spend more time in bed
- Change in sleep-wake patterns
- Little appetite and thirst or even interest in these, therefore less urine and stool output
- Changes in blood pressure, breathing and heart rate
- Body temperature dysregulation: cool, warm, moist or pale skin
- Congested breathing: If they have congested breathing we can suction, but not deep suction into the trachea.
- Confusion or seem in a daze
- May have more pain
Days to hours before death
Not wanting food or drink Stop having urine output or stool Grimace, groan or scowl Unfocused gaze May seem to drift in and out of awareness Irregular or week pulse Rapid or Cheyne-Stokes breathing until there is none Skin cool or mottled
Care of the body after death
-Organ and tissue donation: The floor nurse caring for the patient does not broach this subject. You MUST call a specially trained professional.
-Autopsy: Can be requested or required.
Required if cause of death is the result of criminal violence, suicide, accidental cause (car accident), suspicious death, work place injury, suspected drowning, unexpected death of an infant or child, or while in custody of the police or a local, state or federal institution.
Can be requested by a family for other reasons, but they must pay for it.
-You have to listen for a heart beat for a couple of minutes. We do not fill out the death certificate or determine the cause of death. Two nurses can pronounce the death.
-If the person dies of criminal activity or unobserved death then they cannot remove any of the tubes. They can cut it but leave it in so that the coroner can tell whether the damage done was done my intubation or by other things the nurse has done rather than the initial cause of injury.
Post Mortem Care
-Ensure that the family or loved ones wishes, rituals or customs are respected whenever possible.
-Allow them to assist with final bathing of the body if they desire
-Physical changes in the body can set in rapidly:
Close the eyes and mouth. Leave denture in to support the shape of the mouth.
Remove tubes and IV unless autopsy required
Clean the body and cover with a clean sheet with arms on the outside.
Elevate the HOB some to prevent discoloration of the face.
Place padding under the body in case sphincters relax-No diaper
-Allow the family or loved ones all the time they need with the body.
-Give jewelry and personal property of the deceased to the family and have them sign the appropriate forms.
-Ask the family if they have made arrangements with a mortuary or if they would like you to call one of their choosing.
-Contact the mortuary and they will usually come to pick up the body.
-Contact the appropriate personnel to take the body to the hospital morgue.
Grief
- Loss, Grief, and Bereavement
- Loss: losing a loved one
- Grief: personal feelings that accompany an anticipated or actual loss
- Stage of grief (Kubler-Ross and other grief theories): People don’t move through the stages of grief in a linear fashion, it loops back and forth over time.
- Mourning: individual, family, group and cultural expressions of grief and associated behaviors
- Bereavement: period of time in which mourning takes place
- Professional caregivers are not immune to grief!
- Our care turns from the patient to the family.
Grieving
- Does not follow a prescribed course.
- Just be present-don’t offer platitudes
- Highly visible losses generally stimulate help from others.
- Grief may come out as anger-don’t take it personally
- Grief work is just that, work.
- Refer people to grief resources such as Solace House
Spirituality
- Ask him or her if you and the health care team met their expectations and if there is anything else you can do to enhance their spiritual well-being or enable them to practice important religious rituals.
- Most health care workers are uncomfortable talking about spirituality and beliefs.
- Most hospitals have a pastoral care office-use this resource.
- An individuals spiritual beliefs are very personal. Avoid making assumptions even if you think you are of the same faith or if you have studied about different faith traditions that that individual follows it the same way as others.
- Be sure not to preach. The hospital isn’t the place.
- Are your spiritual needs being met? Can we do anything to meet them?
rituals
- Rituals help express a communal emotion in a shared way
- Late 19th century- memorials for deaths and took pictures with the dead
- think about: What would I want for my death?
Palliative care
- An approach to care of the seriously and/or chronically ill that is comprised of comprehensive symptom management, psychological care, and spiritual support to enhance quality of life.
- can be provided along with curative treatment and does not depend on prognosis.
a resource for anyone living with a serious - illness, such as heart failure, chronic obstructive pulmonary disease, cancer, dementia, Parkinson’s disease, and many others. - Palliative care can be helpful at any stage of illness and is best provided from the point of diagnosis.
- In addition to improving quality of life and helping with symptoms, palliative care can help patients understand their choices for medical treatment.
- The organized services available through palliative care may be helpful to any older person having a lot of general discomfort and disability very late in life.
- Palliative care can be provided along with curative treatment and does not depend on prognosis.
WHO-World Health Organization & death and dying
- Affirms life and regards dying as a normal process.
- Neither hastens or postpones death.
Integrates psychological and spiritual aspects of care. - Offers a support system to help patients live as actively as possible until death.
- Enhances the quality of like.
- Uses a team approach to meet the needs of patient and families.
- Expresses nursing attitude
Palliative Care Trigger Tool (just know this exists)
Does this patient meet any of the following criteria?: (Check all that apply)
- DNR/DNI
- Would not be surprised if the patient died within 12 months.
- ICU stay > 7days, readmission to ICU within 30 days with same diagnosis
- Two or > hospitalizations for the same illness within 3 months
- Admission from long-term care facility or medical foster home
- Prolonged dysfunction of multiple organs (MODS)
- Advanced dementia (bedbound and non-verbal)
- Intracerebral Hemorrhage requiring mechanical ventilation
- Unsuccessful wean and/or prolonged ventilator dependence
Hospice
- A coordinated comprehensive program of holistic interdisciplinary services provided by professional care givers and trained volunteers to terminally ill patient and their families at the end of life.
- provided for a person with a terminal illness whose doctor believes he or she has 6 months or less to live if the illness runs its natural course.
- Someone is available 24/7 for support, but the patient must have a family caregiver to provide care when the patient is no longer able to function alone.
Hospice: core principles
- Provision of interdisciplinary care. Medical and nursing services available at all times.
- Affirms life, but never denies death as a normal process of life.
- Education and support is provided, it honors wishes and supports choices.
- The patient and family are a unit of care.
- A physician-directed service.
- Bereavement follow-up after patient’s death.
- Home care of the dying is preferred.
Support system for dying patients
- nurse
- hospice aide
- social worker: Can assist with finding resources for legal and financial needs.
- chaplin
- grief support
- volunteer
- your personal physician
- hospice physician
Barriers to Improving End of Life Care
Clinicians’ Attitudes toward Death & Dying:
Reluctant to discuss death with patients
Avoid discussion in hopes patient would discover on their own
Awareness contexts
Communication:
Providing bad news
Responding to difficult questions
. They may feel that their job is to fix or cure and death represents a failure.
Glaser and Strauss’ four awareness contexts of the patient, provider and family in regards to discussion of terminal illness or death and dying
. Closed awareness is when the patient is unaware of their terminal state but others are aware.
- Suspected awareness is when the patient suspects what others know and attempts to find out details about their current health condition.
- Mutual pretense awareness is when the patient, the family and the providers are all aware that the patient is dying but all pretend otherwise.
- Open awareness is when the patient, family, and provider are aware the patient is dying and openly acknowledge that reality.
- Communication may also be a barrier to improving end of life care particularly if providers do not know how to respond when providing bad news to patients or responding to difficult questions regarding prognosis.
Methods of Stating End-of-Life Preferences
Advance directives:
- Written documents, individual of sound mind
- Document preferences regarding EOL care to be followed when individual cannot communicate their wishes
- The documents are generally completed in advance of serious illness, but may be completed after a diagnosis of serious illness if the signer is still
Durable power of attorney for health care:
- Legal document
- Signer appoints another to make medical decisions on his/her behalf
- make medical decisions on his or her behalf when he or she is not longer able to speak for him or herself. This is also known as a health care power of attorney or a proxy directive.
Living will:
- Individual documents treatment preferences
Provides instructions for care when individual cannot communicate wishes
- This is also known as a medical directive or treatment directive.
Physician Orders for Life-Sustaining Treatment (POLST):
- Translates patient preferences expressed in advance directives to medical orders that are transferrable across settings and readily available to all health care providers including emergency medical personnel.
- Sometimes advance directives are barriers to improving end of life care for patients because these documents must be followed even if it could potentially result in decreased QOL for the patient.
Infants and Toddlers with death and dying
- Gauging pre-verbal children and their view of death is impossible
- No concept of death based on their cognitive abilities
- Egocentricity of toddlers and their vague separation of fact and fantasy make it impossible for them to comprehend the “absence of life”
- May repeat the statement, “Grandpa is dead; he went to heaven,” but may still expect him to return over a period of a few months
- Behavior related to reacting to their parents’ reactions and anxiety
regression in speech, toileting, Crying, control with food and drink, hitting, biting, with drawl
Encourage parents to stay with the patients as often as possible!
Interventions for this population include:
- Physical comfort
- Consistent caregivers/routine
- Familiar objects
- Family needs of children of all ages:
- Feelings of anger, guilt, anxiety, and helplessness are normal
- They worry about pain and comfort of their child
- Help families identify that their feelings are normal and identify ways to cope
- Respite, seek assistance out side of the family
Preschool Children 3-5yr with death and dying
- Egocentric and have a tremendous sense of self-power
- Believe their thoughts can cause actions
- Struggle with the meaning of “Death”, may see it as a departure or sleep, reversible
- Often will feel that they are sick as a punishment for being bad, especially if parents are unable to stay with them or be present during painful procedures
- Greatest fear of death is separation from parents
- Play provides the preschooler with relief from feelings of grief
- very literal. Telling them “grandma went to sleep” could cause fear that if they go to sleep that they will be gone from everyone just as Grandma is.
- Important to remember that sibling have needs too.
- Developmental level must be considered
- Displaced and isolated in the process
- Feelings of being left out
- Nurses and Child Life can help identify ways to involve the siblings in the caring process
- All interaction with the dying sibling when possible
- Encourage devoted time to the well siblings
- Identify family member or friend to sit with the sibling to keep them busy
- A lot of care goes to caregivers
- Provide consistent caregiver and routine
- Include siblings
- Encourage playtime
School Age children 6-12
- Better understanding of causality and advanced perception of time
- May still associate misdeeds or bad thoughts with causing death
- Clarify the meaning of their statements!!
- Death is personified as devil, God, ghost or boogeyman
- Preoccupied with details: “When you die your body decays in the ground.”
- Understanding that death is universal, irreversible, and nonfunctional
- Attitude towards death are influenced by attitudes and reactions of others
- It is very important for parents to clarify the meaning of their statements and to repeatedly ask the child what they think and what things mean to them.
- Realize death is permanent
- askWhat do you already know?
Fear:
- Reason for illness
- Communicability of the disease to themselves or others
- Consequences of the disease on functioning and relationships
- Process of dying is often more scary than the finality of death
Anticipatory preparation:
- Industry: help give them control
- Understand what is happening
- Participate in what is being done and what to stop and when
Behavior:
- Exhibit fear through verbal uncooperativeness
- Staff could interpret as stubborn, rude, impolite
- Plea for control, “fight or flight”
Adolescent Children 13-17 yrs with death and dying
- Strive for group acceptance and independence from parent constraints
- May feel alienated from peer associates and lean on them for emotional support
- Feeling of being alone
- Support groups or other means of networking are great for this group.
- Mature understanding of death
- Question death and related topics: Religious meaning, Afterlife
- Difficult to accept/cope because of formation of identity
- Tend to think they will NEVER die young
- Allow for as much self-control and independence as possible
- Answer questions HONESTLY! They will call BS on you and never trust you AGAIN!
- Respect their need for privacy, solitude, and personal expression of emotions
- Help facilitate conversations between parents and child
- THIS in many ways is how we as adults deal with death. You never can read someone’s mind.
- Key Points: Listen, Ask, don’t judge, don’t assume and DON’T TAKE IT PERSONALLY
Oxygenation Assessment
- In-depth history of a patient’s normal and present cardiopulmonary function
- Past impairments in circulatory or respiratory functioning
- Methods that a patient uses to optimize oxygenation
- Review of drug, food, and other allergies
- Physical examination
- Laboratory and diagnostic tests