Lecture 2: Data Collection and Informatics Flashcards

1
Q

Intended use of surveillance systems

A
  • Monitor many determinants of health
  • Oldest systems monitor infectious diseases
  • increasingly monitoring overall indicators of population health
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2
Q

Systems for monitoring and detecting disease outbreaks

A
  • Traditional reporting (lab reports and disease reporting)
  • Professional and personal connections
  • Syndromic Surveillance
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3
Q

Four basic tenets of a surveillance system

A
  • incorporating common data elements
  • maximizing appropriate timeliness of data collection
  • ensure accessibility to appropriate partners
  • establishing flexibility for future enhancements
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4
Q

Cooperation is an important aspect of PH surveillance. Who s responsible for providing the reports?

A

HCPs and Labs

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5
Q

Cooperation is an important aspect of PH surveillance. Who s responsible for processing the reports?

A

DOH staff

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6
Q

Cooperation is an important aspect of PH surveillance. Who s responsible for using the information for action?

A

Public health program managers and HCPs

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7
Q

Main areas of surveillance data usage

A
  • Detection (anomalies, outbreaks)
  • Periodic data dissemination (to evaluate program efforts)
  • Archival information storage (to document evolving health status of population)
  • Application of PH protection
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8
Q

Classification of cases by degree of suspicion

A
  • Confirmed
  • Probable
  • Suspect
  • Possible
  • Non-case
  • Insufficient information
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9
Q

Other Units of surveillance besides case of disease

A
  • test results
  • exposure to environmental factor
  • practice of certain behavior
  • clinical signs and symptoms
  • presence of genetic marker
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10
Q

Sentinel surveillance

A

a specific set of healthcare providers or labs, for example, agree to conduct surveillance for a specific condition for a specific timeframe

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11
Q

Duration of data collection

A

usually indefinite (ex. influenza data is collected frequently during flu season, but no so much afterward)

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12
Q

Examples of Active surveillance

A
  • review of emergency department logs

- routine queries of labs or review of lab records

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13
Q

Examples of Passive surveillance

A
  • lab reporting
  • provider reporting
  • ex of when this is used (clinical case reporting of TB by clinicians because no positive lab result is found)
  • Passive surveillance ends up being more cost-effective than Active
  • Limitations (relies too much on providers, incomplete reporting, not easily enforceable)
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14
Q

Sources of data (Administrative data)

A

Data generated in the process of administering an activity or providing a service (ex. hospital admission logs , hospital discharge data, pharmacy sales data, or health care claims data)
-More concrete examples are: Medicare, Medicaid, national health care surveys

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15
Q

What is SPARCS?

A

Statewide planning and Research Cooperative System (a form of hospital discharge data, has info on diagnosis, procedure, age, insurance status, address, race)
-used at DOH to: track priority conditions and program planning, address disparities and neighborhood health profiles, but NOT for monitoring quality of inpatient care.

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16
Q

Sources of data (non-electronic)

A
  • Surveys (assesses prevalence of health conditions and risk, monitors changes over time, assess knowledge, attitudes and practices)
  • Person (interview/survey of affected individual)
  • Provider (astute clinician calls)
17
Q

Sources of data (electronic)

A

-electronic lab info systems
-e health records
-admin data systems
-additional health info systems
-non-traditional electronic data sources
-vital records
disease registries

18
Q

Issues with e data storage and sharing

A
  • how will data be collected
  • where will data be stored (servers)
  • how will data be shared with other entities?
19
Q

Procedures for data access

A
  • data collection occurs at the local level

- data sharing protocols need to be in place

20
Q

Data quality

A
  • systemic analysis needs to be in place to identify errors caused by data entry
  • unique identifiers
  • standardized vocabularies
21
Q

What does HIPPA do?

A

Protects the privacy of identifiable health information (PH agencies like DOH are exempt, but providers and labs have to report)

22
Q

What information is confidential?

A
  • Any health or medical information that can identify or be linked to a specific individual
  • Privileged information (ex: a specific school where DOH may be conducting investigation)
23
Q

Sharing Confidential Info

A
  • Info should NOT be shared without patient consent
  • Exceptions are: protection of ph, mandated TB control activities, patient access to medical record, sharing with other facilities, criminal activity
  • Data transmission (use encrypted emails or secure FTP sites)
24
Q

What is PH Informatics?

A
  • Focuses on the systematic use of info theories and communication technologies to enhance performance of public health practice
  • informatics does not equal information technology (IT)
25
Q

How can we use informatics to achieve goals of surveillance system?

A
  • Maintain the integrity of original surveillance data
  • improve the quality of the surveillance database
  • increase availability of surveillance info to yield most valid, useful and timely info to improve ph practice
26
Q

Terminology: Business process

A

collection of related activities or tasks that produce a specific service or product for a customer

27
Q

Terminology: scope document

A

output expected to be produced by informatics experts

28
Q

Terminology: functional requirements

A

what is the system supposed to accomplish

29
Q

Terminology: Data dictionary

A

definitions of key variables (looks like codebook)

30
Q

Maven

A

Web-based surveillance and management software manufactured by consilience that NY DOH used to look at TB control, STD prevention and control, communicable disease and immunization

31
Q

CORE Team for Maven (all have different perspectives)

A
  • Health department IT staff (balance interest of program and managing vendor)
  • TB control experts (want the system to do exactly what DOH wants efficiently, completely and in a user-friendly manner)
  • Consilience (vendor)–> these guys are a business and want to make client happy while minimizing resources and maximizing profit
32
Q

Steps in setting up a surveillance system

A
  • Business analysis (describe current procedures)
  • Functional requirements (ascertain what is needed in new registry system)
  • Gap analysis (determine how maven does and does not meet functional requirements)