RA 9288: Newborn Screening Act of 2004 Flashcards

(40 cards)

1
Q

A simple procedure to find out if a baby has a congenital disorder that may lead to mental retardation or even death if left untreated.

A

Newborn Screening

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2
Q

What is RA 9288?

A

Newborn Screening Act of 2004

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3
Q

How many sections does RA 9288 have?

A

19

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4
Q

By doing NBS, _ disorders may be detected even before clinical signs and symptoms are present

A

metabolic

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5
Q

Effect if not screened, what disorder:

  • Developmental delay
  • breathing problems
  • neurologic damage
  • seizures
  • coma
  • early death
A

Organic Acid Disorders

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5
Q

Effect if NOT SCREENED:

Urea Cycle Defect

A
  • seizure
  • mental retardation
  • death
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6
Q

The _ _ _ _ was integrated as part of the country’s
public health delivery system with the enactment of
the Republic Act no. 9288

A

Comprehensive Newborn Screening Program

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7
Q

What acts as the lead agency in the implementation of RA 9288?

A

Department of Health

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8
Q

The DOH collaborates with other _ (NGA) and key stakeholders to ensure early detection

A

National Government Agencies

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9
Q

Newborn screening program in the Philippines currently includes screening of how many disorders?

A

6

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10
Q

Name the 6 disorders that NBS screens:

A
  • congenital hypothyroidism (CH)
  • congenital adrenal hyperplasia (CAH)
  • phenylketonuria (PKU)
  • glucose-6-phosphate dehydrogenase (G6PD)
    deficiency
  • galactosemia (GAL)
  • maple syrup urine disease (MSUD)
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11
Q

The expanded screening will include how many more disorders?

A

22

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12
Q

National Policy and Strategic Framework on Expanded Newborn Screening for 2017-2030

A

Administrative Order No. 2018-0025

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13
Q

the Guidelines on the Implementation of the Expanded Newborn Screening Program

A

Administrative Order No. 2014-0045

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14
Q

How many accredited Newborn Screening Centers (NSC) are in the country as defined by RA 9288?

A

6 operational NSCs

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15
Q

When is NBS done?

A

Ideally done immediately after 24 hours from birth

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16
Q

Who are allowed to collect the samples from newborns?

A
  • physician
  • nurse
  • medical technologist
  • trained midwife
17
Q

T/F:

Nurses are not allowed to collect samples for NBS

18
Q

When was RA 9288 approved?

A

April 7, 2004

19
Q

NBS shall be performed after _ hours of life but not later than _ days from complete delivery of the newborn

A

24 hours; 3 days

20
Q

Who are exempted from the 3 day requirement for NBS?

A

newborns in intensive care

21
Q

Newborns in intensive care must be tested by _ days of age

22
Q

What section of RA 9288 is about refusal to NBS?

23
Q

A parent or legal guardian may refuse testing on the grounds of _

A

religious beliefs

24
# T/F: Refusal of parents to NBS may be purely verbal
False | it shall be acknowledged in **writing**
25
# Section 9: The DOH and the _ shall require health institutions to provide newborn screening services as a condition for **licensure** or **accreditation**.
Philippine Health Insurance Corporation (PhilHealth)
26
What section states the lead agency for RA 9288 implementation?
Section 10
27
Within how many days after the enactment was RA 9288 implemented?
180 days
28
Where is the Newborn Screening Center - NIH located?
University of the Philippines Manila
29
What is the committee for NBS according to Section 11?
Advisory Committee on Newborn Screening
30
How many members are in the committee?
8
31
# T/F: The **chairman** of the committee is the Executive Director of the NIH
False. | The chairman is the **Secretary of Health**
32
How many times a year does the committee meet?
At least twice a year
33
What serves as the Secretariat of the Committee?
National Institute of Health (NIH)
34
Who is the chairman of the committee?
Secretary of Health
35
Who is the vice chairperson of the committee?
Executive Director of the NIH
36
# T/F: The Newborn Screening Center shall Be supervised and staffed by trained personnel who have been duly qualified by the DOST.
False. | NIH, not DOST
37
# Section 13: The NIH shall establish a Newborn Screening _ _, which shall be responsible for the national testing database and case registries, training, technical assistance and continuing education for laboratory staff in all Newborn Screening Centers
Reference Center
38
What acts as the principal repository of technical information relating to newborn screening standards and practices?
NIH Newborn Screening Reference Center
39