Week 4- Chronic Illness and Pain Flashcards
(75 cards)
What is Pediatric Palliative Care?
caring for or comforting children living with progressive, life-threatening illnesses
life threatening illness is
illnesses where survival to adulthood is a challenge. In a medical context, “palliative” means to care or to comfort, as opposed to curing
General Principles of Palliative Care for Children
- Simultaneous care: cure and palliative care, goal to increase QOL
- Family centered Approach
- The child and family are viewed as the unit of care, addressing their collective needs - interdisciplinary team
collaborates to deliver comprehensive, coordinated palliative care. - Ongoing assessment
Continuous evaluation of the child and family’s desires and priorities is crucial to guide the care plan.
Psychological QOL
Emotions, feelings
Perspective on what it happening
Open communication
Anxiety
Depression/ anger
Enjoyment/leisure
Pain distress
Happiness
Fear
Cognition/attention
Social QOL
Live as normal a life as possible
Family/friends
Advocating for advance financial social support
Financial burden
Roles and relationships
Access to resources
Affection/sexual function
Appearance
Spiritual QOL
Complex individual
Peace hope positive outlook on life
Religion
Alleviating suffering
Meaning of pain
Transcendence (makes meaning of the experience
Clinical Definition of Pain
“ Pain is whatever the person says it is, existing wherever the person says it does.”
Acute Pain
Sudden onset less than 3 months, brief episode of pain
Pain associated with a brief episode of tissue injury or inflammation with pain intensity decreasing progressively over days to weeks
Chronic Pain
~Persistent or nearly constant for > 3 months
~Is present beyond the expected time of healing
Recurrent Pain
~Painful episodes alternating with pain free episodes both acute and chronic
Consequences of Poorly controlled (post-operative) pain:
5
Slower recovery & ↑ length of stay (don’t want to get up)
↑ Risk of complications & anxiety
Unplanned re-admissions
Chronic pain (12-80% one year post surgery)
↓Immune function & ↑ tumor growth
Endocrine System Negative Effects of Pain
Unmanaged pain triggers elevated stress hormones.
Metabolic rate and heart increase dramatically.
immune system disruption
Persistent pain compromise’s immune function.
Defensive mechanisms become significantly weakened.
Pulmonary consequences
Pain reduces lung flow and volume. Secretion retention and atelectasis become serious risks.
cardiovascular strain
what can increase
Pain elevates heart rate and blood pressure.
Oxygen consumption increases substantially.
Principles of Pain Assessment in Children: QUESTT*
Question the child
Use a pain-rating scale
Evaluate behavioral and physiologic changes
Secure parent’s involvement
Take the cause of pain into account
Take action and evaluate results
Assessment of pain requires attention to:
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Location of pain
Quality of pain
Pattern
Intensity
Childs Experience of Pain
Children’s pain experience is influenced by a complex interplay of physiological, psychological, and environmental factors.
Children’s pain experience is influenced by
a complex interplay of physiological, psychological, and environmental factors.
experience of pain affected by
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Stage of growth and development
Cognitive level
Emotions: anxiety and depression?
Culture (coping strategies)
Behavioral Clues to Pain Objective Data
Guarding
Impaired thought process
Social withdrawal
Altered time perception
Moaning
Crying
Pacing
Distracting self
Restless behavior
Facial Mask of Pain
Physical signs: diaphoresis
BP/Pulse/RR Change
pain response in infants cues
- furrowed brow
- tense
- drawing legs up
- Cry/scream
- Look tense
- facial expression
- Pulling knees up
- Poor Consolability
- Might refuse to eat
- Grimacing
- Sleep disturbances
toddler pain responses
Cry
Scream
Protest
Say NO lots
Withdraw
Can identify pain but can’t tell you much more
Crawled in bed