Week 11: Caring for Kids w/ complex needs, chronic illness, end of life Flashcards
mental deficiency/difficulty
intellectual disability
What are the effects of an intellectual disability?
imapirment of intellectual function, social skills, adptive behaviour
How can you diagnose an intellectual disability
when children of less thna 5 yrs have delays in 2+ domains
gross/fine motor skills
speech/language
cognition
social/personal
activities of daily living
NC: Intellectual Disability
developmental milestone
educating the child and family
teaching the child self-care skills
promoting the child’s optimal development
encourage play + exercise
Methods of communication for kids with intellectual disabilities
AAC communication
speech board
eye gaze
buzzers
What is down syndrome?
nonfamilial trisomy 21
extra 21 chromosome
How can you diagnostically determine if a child has down syndrome?
1-S/S:
- square head, upwards slant to eyes
- flat nasal bridge, protuding tongue
- hypotonia
2-chromosomal analysis
3-physical problems:
- CHD
-hypothyroidism
-leukemia
Mgt of Down Syndrome
surgery to correct congenital abnormalities
evaluation of hearing & sight
periodic testing of thyroid function
Autism Spectrum Disorders (ASD)
neurodevelopmental disorders
- imapair social communication, patterned behavior, unusual sensory sensitivity or intersts
What are early signgs of ASD
Emotional disconnectiokn
sensitivity
lack of empathy, limited emotions
unresponsive to human interactions
difficulty controlling emotions
delayed language development
tendency to use nonverbal communication
diminished ability to decipher expresions/demeanor
repetitive behavior
Therapeutic Management of ASD
medications
non-pharmacolgical interventions
hormonal therapy
When should kids with special needs continue schooling?
as soon as their condition permits
Home care Interventions
as-neeeded home visits
assistance with transportation
regular visits
assessment of patient status
assessment of family status
Services that support effectice home care
social and psychological support
high quality respite care
home renovation
telephone service
internet, compute access
transportation
local emergency facilities
case management services
safe environment (clean, electricity)
Family-Centred Home Care: 3 concepts
home as familliar: where one is most comfortable
home as centre: location of rewarding everyday experiences
home are protector: privacy, safety, identity
