Ethnicity Data Quality Flashcards
(39 cards)
What is the name of the ethnicity protocols?
HISO 2017 Ethnicity Data Protocols
How many Māori are undercounted in the health sector?
One in five Māori (21%) are not identified as Māori in the National Health Index, compared to the self-identified Census.
Around 30% are missed for Māori males and those Māori aged 20-24 years.
Why is good quality ethnicity data important in the health sector?
- Adequate funding allocation to Māori needs (rather than under-funding)
- Delivery of targeted health services to Māori needs (rather than under-servicing)
- Measure Māori health needs
- Monitor the health system’s performance
- Māori workforce representation
How is ethnicity defined?
Ethnic group/s that people self-identify with or feel they belong to.
Cultural affiliation with unique interests, customs or language, a common ancestry and geographic origin.
Why do we use ethnicity in health?
Ethnicity data allows us to have a more comprehensive and complete understanding of people’s health experiences and outcomes.
It is an important factor in developing responsive policies and procedures and providing appropriate healthcare.
Historical and political contexts shape the way in which ethnic groups are conceptualised, defined and measured.
Different from race (physical characteristics), descent (biological ancestry), nationality (country), citizenship, and culture.
What is ethnicity?
Social category influencing people’s experiences and outcomes.
Ethnicity is relevant to the understanding and measurement of health because the biggest influence on inequities are social determinants.
Self-identification is important as it aligns with self-determination and the right for Māori to name ourselves.
Why do we need to ask ethnicity in a standardised way?
Changes to the question can impact the results (such as wording, layout, options).
It has implications for monitoring trends and inequities over time.
Multiple ethnicities (identify with multiple ethnic groups) and ethnic mobility (changes over time).
Example: 1996 Census change of wording encouraged more individuals to identify with multiple ethnic groups.
Who collects ethnicity data?
- Primary and secondary care - National Health Index (ongoing)
- Hospitals - National Health Index (ongoing)
- Stats NZ - Census (5 yearly)
- Central health agencies - Workforce surveys and NZ Health Survey
- Birth and death registrations (at time)
What is the action plan for improving ethnicity data quality?
- Leadership
- Knowledge, education and training
- Compliance
- Accountability and monitoring
- IT systems improvement
In the Primary Care Ethnicity Data Audit Kit, what is Stage 1?
Systems compliance audit checklist
A primary care provider can complete the checklist to find out whether their systems comply with capturing high quality ethnicity data. There is a clear criteria to calculate scores and address issues. To be completed by someone with a good understanding of the process to input ethnicity data.
In the Primary Care Ethnicity Data Audit Kit, what is Stage 2?
Staff survey
Staff are distributed a survey to complete within a primary care provider. Each survey is marked and scored. Results are distributed along with any quality improvements and training requirements.
In the Primary Care Ethnicity Data Audit Kit, what is Stage 3?
Ethnicity data quality audit
A sample of 100 consecutive patients is collected from a primary care provider. The data is compared using the Patient Management System to identify the level of match (match, partial and total mismatch). Results are calculated to identify any quality improvements.
What are the protocols for collection and confirmation?
Paper form, electronic form, telephone, interpreter.
Collected at any time but must be at least every 3 years. Confirmed at any time.
Collector must not guess, correct or complete on their behalf.
Collector must not ask to choose a principal ethnicity.
If it has not been filled in, collector should ask to confirm whether they have left the question intentionally. Electronic form should not allow the question to be left blank.
Links to more information about ethnicity if electronic form.
Can have a “I don’t know” or “I do not want to state”
Assisted response using an aid or proxy response using a nominee or next of kin or guardian.
There is no legal or recommended age, when the child is capable of understanding the concept of ethnicity.
What is the ethnicity question?
Rigorously tested by Stats NZ.
“Which ethnic group do you belong to? Mark the space or spaces that apply to you.”
List of ethnicities must all be present and, in order shown in the graphic.
- NZ European
- Māori
- Samoan
- Cook Island Māori
- Tongan
- Niuean
- Chinese
- Indian
- Other. Please state:
No additional categories may be added.
Preferably that the categories are listed vertically.
Any collection method must allow multiple ethnic groups to be selected and must allow multiple ethnic groups to be entered in the ‘other’ section.
What are the protocols for classifying, recording and storing?
Recorded at Level 4 (most detailed level).
IT must be capable of recording up to 6 ethnicities. Process for reducing if more than 6.
New Zealander has a separate code.
Residual codes (don’t know, refused to answer, outside of scope, response unidentifiable.)
Iwi is coded as Māori.
What are the protocols for analysis and output?
Comparable data about groups of interest.
Aggregation of data in the output.
Any output requires clear description of the method and categories used, and limitations.
Where there are multiple ethnicities, the below methods should be used:
- Total response (overlapping)
- Prioritised
- Sole/combination
Total response
Each respondent is counted in each of the ethnic groups they reported.
The sum will exceed total population.
Level 1 aggregation.
Most common along with prioritised.
Prioritisation
Each respondent is allocated to a single ethnic group using the prioritisation table.
The sum will equal the total population.
Denominator data must also be prioritised.
Level 1 and 2 aggregation.
Inconsistent with the concept of self-identification.
Most common along with total response.
Sole/combination
Sole ethnic categories for respondents who report only one.
Combination categories for respondents who state more than one.
The standard Stats NZ single/combination minimum output has nine groups: European, Māori, Pacific Peoples, Asian, Other, Māori/ European, Māori/Pacific Peoples, ‘Two groups Not Elsewhere Identified’ or the category titled ‘Three groups’.
What are the underlying principles for high quality ethnicity data?
- Māori have a right to be counted and therefore, valued.
- Māori have the right to monitor the Crown.
- Māori have indigenous rights as tangata whenua to be a priority within ethnicity data analyses.
- Māori rights to mana motuhake (self-determination) require indigenous data sovereignty principles to be upheld.
- The Crown requires high quality ethnicity data and analyses for Māori to uphold its obligations under Te Tiriti o Waitangi.
- Values and positioning should be framed to support equity and Māori indigenous rights.
What is the first step to analyses?
Clear understanding of the purpose of the analysis, what questions need to be answered
Following this will determine the best approaches or methods for answering these questions, including the most appropriate sources of information.
The nature of datasets, data quality (including ethnicity data) and availability, reach of the dataset
Presentation of any data should include the data source, quality and impact of these on the presented estimates, methods to address missing or poor data quality
Māori population
Examination of a range of information:
Number of Māori in the population (total, regional, local) and their demographic characteristics
Stats NZ - population census, ERP and population projections
Measuring Māori health status and need
Estimated Resident Population
Numbers from the associated census adjusted for migration, births and deaths, and missing data
Stats NZ
Currently the best estimate of the Māori population - best measure for size and age-sex structure.
Based on the respective census counts, with adjustments for census non-response (people who did not complete census forms), net census undercount (people who were missed in the census), residents temporarily overseas on census night (RTO), and estimated population change between census date and mid-year.”
Māori population projections
Best for planning
Stats NZ
Projected Resident Population