Patient/ Family Education

Question 1

______ the course of the disease

Answer 1

Instruct

Question 2

Stress importance of not ______ the pt and avoid factors which _____ symptoms:

Answer 2

fatiguing

increase

Question 3

Factors that increase symptoms:

Answer 3

• Emotional stress
• Pregnancy
• Infections
• Heat
• Trauma

Question 4

Skin checks and skin care:

Answer 4

Important when pt:

• is unable to move self
• Has diminished sensation
• Unwilling to move self

Question 5

Positioning to:

Answer 5

• Avoid contractors
• Avoid decubitus
• Enhance psychological well-being
• Promote lung drainage
• Promote bowel/bladder drainage
• Decrease incidence of osteoporosis
• Decrease tone

Question 6

Home exercise program

Answer 6

• Specific ex’s based on deficits

- Emphasize energy conservation: rest periods

Question 7

Equipment:

Answer 7

• Make adaptive w\equipment available as the disease progresses
• If the pt needs a w/c, teach w/c mobility (light w/c is important)