quiz 4 Flashcards
death and dying in america
- 3 major studies paint a grim picture of the experience of dying
Field and Cassel (1997), Last Acts (2002), SUPPORT (1995) - Half of DNR orders are written within 2 days of death
- Disparity between the way people actually die and the way they want to die
the need for palliative care
- Late 1800s
Little to offer patients beyond easing symptoms
Most died at home cared for by family within days of illness onset - Early to mid 1900s
Healthcare shift from comfort to cute
Death became equated with medical failure
Cause of death
- Demographic and social trends
Early 1900s –> Current
Medicine’s Focus: Comfort -> Cure
Cause of Death: Infectious Diseases ->
Communicable Diseases
Chronic Illnesses
Death rate: 1720 per 100,000
(1900) ->
800.8 per 100, 000
(2004)
Average Life
Expectancy:
50 -> 77.8
Site of Death: Home -> Institutions
Caregiver: Family -> Strangers/Health Care Providers
Disease/Dying
Trajectory:
Relatively Short -> Prolonged
experience of dying
4-Dimensional
- Physical
- Social
- Psychological
- Spiritual
4 paths for Death
- Slow decline, periodic crises
- Sudden, unexpected cause
- Lingering, expected death
- Steady decline, short terminal phase
barriers to quality care at end of life
Failure to acknowledge the limits of medicine
Lack of training for healthcare providers in discussing dying
Hospice/palliative care services are poorly understood
Rules and regulations
Denial of death
Inadequate pain/symptom management
what is hospice?
Delivery system that provides palliative care for patients with limited life expectancy who require comprehensive medical, psychological, and spiritual support
“Hospice” is from the middle ages and used to designate way-stations for pilgrims traveling to Holy Land
what does hospice include?
Interdisciplinary care
(Volunteers, physicians, counselors, social workers, spiritual/bereavement counselors, hospice aids, therapists, nurses – surround patient and family (main team))
Medical appliances and supplies
Drugs for symptom and pain relief
Short-term inpatient and respite care
homemaker/home health aide to relieve caregiver burden
Counseling, spiritual care, bereavement services
Volunteer services
Number of hospices has increased by 13.4 % since 2014
what is palliative care?
Philosophy of care and an organized structure that improves quality of life for patients and families facing a life-threatening illness. Focuses on prevention and relief of suffering
In 2000, only 632 hospitals had palliative care programs. Now more than 80% of large US hospitals offer CAPC
Patient and family as unit of care and they set goals, their education and support is focus
Attention to physical, psychological, and social & spiritual needs
Interdisciplinary team approach
Extended across illness and care settings
Continues after death with bereavement support
Bothe curative and life-prolonging care might be offered with palliative care (unlike hospice)
what does palliative care do?
Addresses suffering
(Physical, psychological, spiritual/existential)
Improves quality of life
(assess/manage pain and other symptoms)
Provides a team approach to care
(Patient and family decide what THEIR goals are (not the healthcare team))
Promotes excellent communication, allowing patient and family to make good decisions about care
4 dimensions of care for quality of life
- Physical
(Functional ability, strength/fatigue, sleep and rest, nausea, appetite, constipated, pain) - Psychological
(Anxiety, depression, enjoyment/leisure, pain distress, compassion fatigue, happiness, feat, cognition/attention) - Social
(Financial burden, care giver burden-respite care, roles and relationships, affection/sexual function, appearance) - Spiritual
(Hope, suffering, meaning of pain, religiosity, transcendence)
role of nurses in palliative care
Some things cannot be “fixed”
Use of therapeutic c pressure
Comfort care (pain, secretion, wounds, constipation)
Administration of medicines, therapy
Patient, family needs
payment for hospice
Medicare
Medicaid
Most private loans
payment for palliative care
Philanthropy
Free-for-service
Direct hospital support
hospice medicare eligibility criteria
patients doctor and the hospice medical director use their best clinical judgment to certify that the patient is terminally ill with life expectancy of 6 months or less, if the disease runs its normal course
The patient chooses to receive hospice care rather than curative treatments for his/her illness
The patient enrolls in a Medicare-approved hospice program
hospice vs palliative
hospice: Patient is considered “terminal” with less than 6 months to live
patient/family chooses NOT to receive aggressive, curative care
Focuses on “comfort” versus “cure”
Expenses are covered by Medicare, Medicaid, and most private health insurers
palliative: Ideally begins at the time of diagnosis of a serious illness
No life expectancy requirement
Can be used to complement curative care
Expenses are covered by philanthropy, fee-for-service, direct hospital support
For pediatric patients, care is provided through mandates from the Affordable Care Act
what is palliative care committed to?
Providing interdisciplinary care that promotes attention form a variety of healthcare professionals (nurse, physician, social worker, chaplain, speech pathologist, medical librarian, etc) using a team approach
Promoting the family as the unit of care
how much more does it cost if i choose palliative care?
2008 study
There was a savings of $1696 in direct costs per admission ($279/day), compared with usual care (for those who were discharged from the hospital)
There was a savings of $4908 in direct costs per admission ($374/day) compared with usual care (for patients who died in hospital)
WHY THESE LOWER COSTS?
Fewer laboratory/diagnostic tests and medications were ordered, less intensive care admissions
findings on end of life care
- Incentives under fee-for-service Medicare result in more use of services (hospital days, intensive care, emergency care), more transitions among care settings, and late enrollment in hospice, all of which jeopardize the quality of end-of-life care and add to its costs.
- The establishment of specialty practice in hospice and palliative medicine is a major improvement in the education of health professionals. Three problems remain: (1) insufficient attention to palliative care in medical and nursing school curricula; (2) educational silos that impede the development of interprofessional teams; and (3) deficits in equipping physicians with sufficient communication skills.
how do healthcare professionals cope and avoid burnout?
Dehumanize their patient’s suffering
Share their distress at team meetings and seek their social support to avoid compassion fatigue
Active relaxation when away from work: exercise, hobbies, sports
Find satisfaction and meaning in end of life
right to die?
Death will dignity laws exist in some states that allow the terminally ill patient to decide how and when to end their life if their suffering becomes unbearable.
In those states patients can legally request and receive prescription medication from a physician that will lead to their death in a peaceful, human and dignified manner
NOT LEGAL IN PA
overview of hospice vs palliative care
Palliative care addresses quality-of-life concerns, in addition to medical care
Family is part of care
Hospice is comfort, not curative, care
Importance of interdisciplinary approach to car
Risk society, Global Vulnerability and Fragile Resilience; Sociological View on the Coronavirus Outbreak
Health approaches to covid has become politicized on a global scale (not good)
Coronavirus are a large family of viruses running form the common cold to more severe disease such as middle east respiratory syndrome and severe acute respiratory syndrome
12/8/2019 starting in China and spreading to 30+ countries
US public health approach (2 week quarantine to “flatten the curve”)
Enhance the capacity of clinics and hospitals
Strict quarantine of infected patients
Handwashing and cough etiquette campaigns
Most important consequence from pandemic, creation of social anxiety worldwide
Risk society, part of our daily life, systematic way of dealing with hazards and insecurities induced and introduced by modernization itself
Due to “reflexive modernization” – unintended and unforeseen side-effects of modern life backfire on modernity, questioning the very basis of its definition
Vulnerable societies: inability of people and societies to
Social interactions, institutions, cultural values
Want to manage conflicting opinions, quelling societies paranoia, insecurities
Sterile society: a society safe from hazards and
Antimicrobial resistance (AMR) cause directly linked to human behavior in the environment, human behavior is killing our own race and world
COVID 19 & Sociology – Social Disaster
Authoritarian lockdowns but other countries defended “freedom” and “the economy” which caused huge spikes in cases
Women in DV relationships would be stuck in the home
Employment and market demand collapsing in previously successful businesses, etc.
COVID 19 & Sociology – Sociology
Timeline of COVID was/is similar to the HIV/AIDS pandemic where governments sabotaged the person-to-person interaction practices that are the effective ways to stop an infectious disease agent and instead they produced a torrent of lies and hostile fantasies designed to divert blame, create confusion and disempower their citizens
there exists a sociology of disasters, but it mainly examines disasters AFTER the fact to improve emergency management – and here we are in the midst of it and management is a large part of the disaster
Sociology as we know it is not very good in handling a historical moment, unpacking a conjuncture, let alone grasping a radically new situation like this