LEC 7: Family Caregiver Strain and Burden Flashcards Preview

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Flashcards in LEC 7: Family Caregiver Strain and Burden Deck (18)
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1
Q

Family Caregiver Strain and Burden

A

When the emotional or physical health of caregivers is compromised or when the demands of care outweigh available resources.

2
Q

Assessment of Caregiver Burden

A
  • Measurement tools (research) Number of hours, types of tasks
  • Emotional distress
  • Depressive symptoms
  • Options: Ask about a specific issue or task they perform and the amount of distress or difficulty associated with it.
3
Q

What does caregiver strain and burden encompass?

A
  • Encompasses the difficulties assuming and functioning in the caregiver role as well as associated alterations in the caregiver’s emotional and physical health that can occur when care demands exceed resources.
  • Caregivers experience differing challenges during different phases of the cancer trajectory that can significantly impact their functioning and quality of life.
  • Family caregiving often is associated with multiple rewards, yet the diversity and intensity of caregiving roles also can result in caregiver strain and burden.
  • Using interventions to reduce the strain and burden on caregivers of patients with cancer is an important role nurses play.
4
Q

Caregiver Strain

A

Difficulty with duties and responsibilities associated with the caregiver role.

5
Q

Caregiver Burden

A

Alterations in caregiver’s emotional and physical health that can occur when care demands outweigh available resources.

6
Q

Interventions

A
  • Psycho-educational
  • Supportive
  • Psychotherapy and cognitive behavioural
  • Massage or healing touch
  • Respite or adult day care
  • Multicomponent
  • Interventions aimed at improving care recipient’s competence
7
Q

Recommended for Practice

A
  • Cognitive Behavioural intervention/ Approach
  • Psychoeducation/ Psychoeducational interventions
  • Supportive Care/ Support Interventions
8
Q

Likely to Be Effective

A
  • Caregiver Training and Skill Development
  • Couples Therapy
  • Decision Support/ Decision Aids
  • Mindfulness-Based Stress Reduction
  • Multicomponent Interventions
9
Q

Effectiveness Not Established

A
  • Art Making/ Art Therapy
  • Exercise Expressive Writing/ Emotional Disclosure/ Journaling
  • Family-Focused Grief Therapy
  • Healthcare Provider Interventions
  • Massage/Aromatherapy Massage
  • Meditation
  • Music/ Music Therapy
  • Orientation and Information Provision
  • Palliative Care Advisor Services
  • Provider Communication Skill Training
  • Spiritual Interventions
  • Structural Assessment
  • Yoga
10
Q

Cognitive Behavioural Interventions

A
  • Cognitive behavioural interventions are designed to reflect concepts from cognitive behavioural therapy, which examine the associations among thoughts, feelings, and behaviour.
  • Cognitive behavioural interventions do not involve full cognitive behavioural psychotherapy; however they do assist patients in identifying negative or unhelpful thoughts and beliefs so they can be altered.
  • Cognitive behavioural intervention approaches also help individuals to identify helpful and unhelpful behaviours, establish goals, and develop skills to solve problems and implement new behaviours to facilitate effective coping.
  • Structured programs based on cognitive behavioural approaches may include activities such as education or relaxation training, may be provided in individual or group settings, and may be delivered in person, by telephone, or by other methods.
11
Q

How does cognitive behavioural interventions help with caregiver strain and burden?

A
  • Encourage caregivers to identify negative or unhelpful thoughts and beliefs so they can be altered.
  • Establish goals.
  • Develop problem-solving abilities to implement new behaviours to facilitate coping.
12
Q

Psychoeducational or Psychoeducation Interventions

A
  • Encompass a broad range of activities that combine education and other activities such as counselling and supportive interventions.
  • May be delivered individually or in groups and may be tailored or standard.
  • This type of intervention generally includes providing patients with information about treatments, symptoms, resources, and services; training to provide care and respond to disease-related problems; and problem-solving strategies for coping with cancer. Interventions may include the use of booklets, videos, audiotapes, and computers, and formats may be interactive among healthcare professionals and patients and caregivers, self-directed vie the use of CDs and other materials, or delivered online or telephonically.
13
Q

How does psychoeducational or psychoeducation interventions help with caregiver strain and burden?

A
  • Education
  • Counselling
14
Q

Supportive Care

A
  • Involves the provision of emotional support informally or through structured interventions.
  • Support interventions include activities such as general counselling related to emotional and other issues, active listening, and presence.
  • Supportive interventions may be provided by healthcare professionals can be one-on-one individualized sessions, support group sessions, or specific interventions with caregivers, families, ect.
  • Support interventions may be provided via telephone, physical presence, or online groups that may be either referred by a professional or unrefereed.
15
Q

How does supportive interventions help with caregiver strain and burden?

A
  • Structured support
  • Unstructured support
16
Q

Canadian Caregivers

A
  • 3 in 10 Canadians age 15 and over, are caregivers for someone with a chronic health problem.
  • More likely to be women, caring for child or spouse.
  • Caregiving for a child or spouse more likely the result in depression, health problems, financial difficulties.
  • 42% of caregivers state they are not receiving as much support as they need.
17
Q

The Home Care Knowledge Network, Family Caregiving in Canada

A
  • What is needed:
    • Safeguarding of caregiver health and well-being
    • Increased respite care
    • Access to information and education
    • Flexible workplaces that respect caregiving obligations
18
Q

What if Canada was the best in the world at meeting the needs of family caregivers?

A
  • Safeguard caregiver health and wellbeing
  • Increased respite care
  • Family caregivers would be assessed for specific needs and provided with the emotional, psychological, and physical support to sustain their contributions
  • Financial support would be available
  • Access to information and training would be available
  • Job protection and income support