HealthPsyc6 Flashcards
Case study, Lucy:
Diagnosed 2 days ago with breast cancer
Aged 37; married with one child (3 years old); would like another child
Decisions to make
• Surgery
• ‘Mastectomy’ versus ‘Lumpectomy + Radiotherapy’?
• Breast reconstruction?
• Immediate or delayed or not at all?
• More (adjuvant) “insurance” treatment?
• Chemotherapy?
• Hormone therapy?
• Fertility options?
• Fertility treatment prior to chemotherapy?
• Other decisions: Complementary therapy; Clinical trial
• Weighing up medical and personal concerns
My health /the benefits in terms of survival
& My ability to keep the family functioning/quality of life
- Effects of treatment on ability to have children, sexuality or body image
- Weighing up uncertain risks against uncertain side-effects (additional chemotherapy / hormone therapy)
20% risk/chance of relapse
(Likely) loss of fertility / onset of menopausal symptoms
Paternalism
(Professional-centred approach) • Doctor is the Expert • Protects patient from disturbing information • Takes away the burden of decision-making • Projects confidence and care • Dr makes the decision in patient’s best interests
Patient-directed/Autonomous:
Patient as “the consumer”
Doctor
• Tells patient all the relevant information
• Is available to answer patient’s questions
• Does not make a recommendation
• Allows patient to reach his/her own decision
Shared decision-making (SDM)
• The SDM approach is positioned in
between the paternalistic and patientdirected
approaches
• A process in which the health professional
and the patient collaborate in making the
best use of evidence to make informed,
value-based decisions that they can both
agree upon
• Central tenet of SDM is that patients and
health professionals have different but
equally valuable perspectives and roles
within the medical encounter
Legislation and policy
• “Health programs should facilitate collaborative processes between patients, caregivers, and clinicians that engage the patient and caregiver in decision-making”. (US; 2010)
•“No decisions about me, without me” (UK, 2012)
• “Patients have a right to be included in decisions and choices about [their] care” (Australian Healthcare Charter of Healthcare Rights;
Australian Commission on Safety and Quality in Healthcare, 2008)
SDM Clinicians Expertise
Diagnosis Disease aetiology Prognosis Treatment options Outcome probabilities
SDM Patients Expertise
Experience of illness Social circumstances Attitude to risk Values Preferences
SDM Approaches
- Many different approaches/models of SDM
- Charles et al (1997; 1999)
- Legare et al. (2011)
- Elwyn et al. (2012)
- No one accepted “gold standard” definition of SDM
- Approaches often similar in their essence, but have different names, stages, focus.
SDM Approach: Charles et al. (1997; 1999)
SDM Framework by Charles, Gafni & Whelan (1997, 1999)
• Pioneering model of SDM
• Most widely cited model of SDM (2040 citations)
• An encounter in which BOTH health professional and patient:
- Share information (Information exchange): physician informs the patient of all relevant information about available treatment options (e.g. risks/benefits); patient provides information about their preferences, values, beliefs, social context, and knowledge about the illness/treatment.
- Mutually deliberate on treatment options (Deliberation): process of expressing and discussing treatment preferences in an interactive process.
- Choose a treatment to implement (Decision): both parties work towards reaching an agreement and action plan to follow.
See slides for some good diagrams
SDM Approach: Legare et al. (2011)
Legare et al. (2011) Interprofessional Model of SDM
• Extends upon the pioneering models of SDM
• Adds additional health professionals to SDM model
• Acknowledges the significant roles of family and decision coaches
• Includes additional stages of DM
• Decision to be made
• Feasibility
• Implementation
• Outcomes
See slides again
SDM Approach: Elwyn et al. (2012)
Shared decision making: a model for clinical practice.
• Extends upon the “pioneering” SDM models
• Provides guidance about how to accomplish approach in routine clinical practice
- 3-step model: practical, easy to remember
- Based on
- Choice Talk (introducing choice)
- Option Talk (describing options, decision-support tools)
- Decision Talk (helping patients explore preferences and make decisions)
- Underpinned by process of deliberation
Shared decision making: a model for clinical practice.
• Acknowledges that DM may be an ongoing and progressive process and may be repeated over time
• Acknowledges that the SDM process begins early, well before the patient has informed preferences
• Choice talk: does not necessarily have to occur during a face-to-face consultation (email, letter, telephone call)
• Option talk: May include use of decision support (e.g. decision aids, option grids) and discussions with others
When should SDM be used
- One size does not fit all
- Patient preferences vary
- BUT… Particularly appropriate in preference-sensitive scenarios:
- Treatment outcomes are uncertain
- Quality of life may be affected
- Patient values determine the best outcome
- For example:
- Mastectomy vs lumpectomy + radiotherapy
- Adjuvant chemotherapy where benefit is small
- Cancer prevention interventions (e.g. tamoxifen)
Do patients want SDM?
- Australian survey (Davey et al, 2002): >90% of women preferred SDM re screening and diagnostic tests
- European survey (Coulter & Jenkinson, 2005; n>8,000): >70% of patients wanted SDM
- Should not be forced on patients- DM style should align with patient’s preferences
- Discrepancies between preferred and actual decision-making roles may lead to:
- Decreased patient satisfaction with care
- Decreased quality of life (Singh et al., 2010)
Is SDM Effective?
- Patients involved in SDM report increased:
- Overall satisfaction with their care
- Satisfaction with the doctor-patient relationship
- Satisfaction with the decision-making process
- Knowledge
- Quality of life
- Treatment adherence
SDM Patient Barriers
Conforming to social expectations of doctor/patient
roles
• Emotionally vulnerable and emotional, possibly feeling
powerless
• Lack a medical vocabulary
There is great variability in the degree to which patients prefer to be involved in decision-making
Empowerment vs. Abandonment
SDM Doctor Barriers
- Not an easy task for the health professional
- Most not trained in SDM (particularly in Australia!)
Common misconceptions/myths: • “Patients will feel unsupported when making decisions” • “It will lead to longer consultations” • “I already do this” • “It will make people more anxious” • “Not everyone can do this” • “There is no evidence behind SDM” • “SDM is too complex for some vulnerable patients (e.g. low health literacy) - they won’t understand” (Hoffman et al, 2014 – see reading)
Communication strategies/interventions for patients
- Coaching patients to ask questions (ASK)
- Decision Aids (DAs)
- Question-Prompt Lists (QPLs)
- Clinician strategies/interventions also exist (e.g. communication skills training)
Asking questions can help
• Study in a GP setting: standardised patients (actors)
• Patients (actors) coached to ask 3 questions:
1. What are my options?
2. What are the possible benefits and harms of those options?
3. How likely are the benefits and harms of each option to occur?
• Designed to prompt physicians to provide minimum information that
patients need to make an informed decision
• It worked! In consultations where patient-actors asked questions:
• doctors gave more information
• patients were more likely to share in decision-making
(Shepherd et al, PEC, 2011)
ASK Feasibility Study
4-min ASK video clip viewed by 121 participants:
• https://www.youtube.com/watch?v=vVnTw9ldX8I
• For those participants making a decision:
• 87% asked at least 1/3 questions and 43% asked all 3 questions
• 49% recalled all 3 questions two weeks post-consultation
Decision aids (DAs)
- Inform
- Provide evidence-based information about: the condition, ALL options, benefits and harms
- Communicate probabilities in a clear graphical form
- Clarify values
- Explore patient experiences
- Ask which benefits/harms matters most
- Facilitate communication
- Support process
- Guide in steps in deliberation/communication
- Provide worksheets, list of questions
• A surge in production of DAs
• The optimal format will depend on the clinical situation,
the patient population involved and any cost restrictions
• More detailed DAs seem more effective than simple DAs
- The International Patient Decision Aid Standards (IPDAS) – 2006
- road criteria to determine the quality of patient DAs
- DA inventories:
- the Ottawa Hospital Research Institute A to Z Inventory of DAs
- http://decisionaid.ohri.ca/index.html
How do DAs benefit patients
- Improve knowledge of screening/treatment options
- Facilitate more realistic and accurate expectations of possible benefits and harms
- Facilitate choices that are more consistent with patients’ values/what matters to them most
- Increase active participation in decision-making
- Improve doctor-patient communication
- Reduce overuse of major elective surgeries, PSA (prostate cancer) screening, and the choice to use menopausal hormones (HRT)
Question prompt lists (QPLs)
• “I just don’t know where to start- can I ask
questions? What questions do I ask?”
• Provide a list of common questions patients may
want to ask
• Questions may relate to:
• My illness – what is it (diagnosis)
• How serious is my illness (prognosis)
• Treatment options
• Benefits of treatments
• Costs of treatments
• Support for me and my family
• Invite patient to tick relevant questions, add
their own
• Are taken into consultation as a prompt
• Endorse question asking
• Both patients and doctors find QPL useful and helpful
• Increases likelihood of asking “difficult” questions
• More effective with Dr’s endorsement
• Can be used in subsequent consultations
• http://www.cancerinstitute.org.au/patient-support/what-i-need-to-ask
Family involvement in DM
- Very little research on family involvement in DM
- However, family usually involved in some capacity
- Hobbs et al. (2015), US, N=5285 cancer patients
- Family controlled decision-making: 1.5%
- Shared decision-making with family: 49.4%
- Some family input: 22.1%
- Little family input: 28.5%
- Patients more likely to prefer greater family involvement if they were: married, female, older, from an ethnically diverse background (Asian, Hispanic)
How do family fit into the DM process
- Based on qualitative interviews, quantitative analysis of consultation audiotapes (Laidsaar-Powell et al., 2015; 2016;)
- Family involvement can extend across all stages of DM (and more)
- Involvement usually extends to: before, during, after consultation
- Additional stages to those proposed by Charles et al. (1997; 1999)
