L10: Impact of ALD Flashcards

(27 cards)

1
Q

what % experience depression post stroke

A

60-70

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2
Q

what % experience depression post stroke aphasia

A

19-22%

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3
Q

who is more likely to have depression post stroke?

A

african american > white

impaired reading comp

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4
Q

what does depression lead to in post stroke aphasia?

A

poor emotional well being

reduces effects of rehab

impacts neg on long-term functioning and QoL

leads to higher mortality rates

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5
Q

other than depression, what other sequelae may occur in post stroke aphasia?

A

adjustments to daily living

disenfranchisement and marginalization (poor social participation)

higher rates of co-morbidities

higher rates of institutionalization esp among older persons w aphasia

loss of paid job

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6
Q

QoL=

A

an indv’s perception of their position in life in the context of the culture and value systems in which they live and relations to their goals, expectations, standards, ad concerns

aka complex (dont memorize)

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7
Q

health-related QoL (HRQL) =

A

the impact of a health state on a person’s ability to lead a fulfilling life

incorporates an indvs subjective evaluation of his or her physical, mental/emotional, family, and social functioning

more narrow than QoL

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8
Q

indvs w post stroke aphasia (in relation to HRQL) report…

A

sig worse HRQL than non aphasic post-stroke controls

worse QOL than healthy controls - independence, social relationships, and access to aspects of their enviro

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9
Q

what are the 4 factors associated with poorer HRQL - qualitative evidence?

A

emotional distress/depression

extent of comm disability and aphasic imp (more severe worse than milder)

presence of other medical problems

functional status/activity levels

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10
Q

what are some factors (7) contributing to or detracting from HRQL (qualitative evidence)?

A

activities

verbal comm

body functioning

social support/social network

adaptation of personal identify and dev of a collective identity

looking to the future/having a pos outlook

taking charge of one’s own continued comm improvement

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11
Q

what are the 5 factors related to living successfully w aphasia?

A

social network

making a pos contribution

enabling enviros and opps

flexible and responsive services

accessible info and aphasia aware professionals

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12
Q

ICF vs AFROM

A

ICF = international classification of functional disability of health … a way of classifying health and health related conditions. includes body fxs/structures, activity, participation, enviro/personal factors. can be used as an outcome measure, but for aphasia it is so broad so it lacks specificity.

AFROM = was dev from the ICF, specific to aphasia. NOT an outcome measure - a framework you may go about ax indvs w aphasia. Considers QOL and life participation. Common language for stakeholders.

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13
Q

what are 3 issues with ax QOL for aphasia?

A

selection and presentation of materials (aphasia friendly)

interviewer skills (supported convos for adults w aphasia - SCA)

use of proxies (proxy evaluations cannot be used interchangeably w self-reports)

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14
Q

what are the two types of QoL scales?

A

generic = across popns, broad-based/comprehensive

cond specific = w/i popn, precise

are complimentary and not mutually exclusive!

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15
Q

assessment for living with aphasia (ALA) is an example of

A

an outcome measure

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16
Q

what are the 5 important needs of relative/friends of persons with aphasia?

A

to feel PWA was in a safe enviro/receiving professional services

to be informed

to learn how to help PWA

to have hope

to be recognized as a member of the rehab team

17
Q

relatives/friends of persons w aphasia felt that the PWA was at

A

the center of the rehab journey

17
Q

what are the 3 clinical implications from the study on relatives/friends of PWA?

A

sig other’s perception of vulnerability = SLP can teach SCA to help SOs re-evaluate their perceptions

self-denial focus = SLP can reinforce SO’s own place and role in rehab

Family-centered care = SOs might feel more comfortable expressing their needs

18
Q

client-centered or relationship-centered or family-centered care contributes to…

A

improved outcomes and inc quality of care

19
Q

client-centered care allows for ____ goal setting…

A

collaborative

input from the SLP and the PWA +/- the care partner

SLP input - imp type and severity
PWA +/- care partner input - needs and desires relative to tx targets

20
Q

what are 3 goal development considerations in client-centered care?

A

values

hierarchy (LTGs and STGs)

Indv factors (ex. acceptance of imp, motivation, trust)

21
Q

what are the 9 broad categories of goals of PWA?

which are consistent w stroke w/o aphasia? (w/o A)

Which are distinct from stroke w/o apahsia? (w/ A)

A

return to pre-stroke life

comm (w/ A)

physical fx and health (w/o A)

speech therapy and other services (w/o A)

control and independence

dignity and respect (w/o A)

social, leisure, and work (w/ A)

altruism and contribution to society

information (w/o A)

22
Q

communication as a goal is often

often involves…

A

a higher priority than physical goals

expressing basic needs as well as opinions … and comm about real life

23
Q

third party disability =

A

disability and fx of family members due to the health cond of sig others

24
third party disability leads to neg changes to...
physical, mental, emo health -85% comm-85% relationships-95% recreational activities and social lives - 70% paid/volunteer work and education -50% caregiving and domestic duties -90% fiances -30%
25
what are some barriers to family centered care?
constraints on time insufficient financial backing for family centered care SLP limited experience addressing family members' needs unfamiliarity w cultural needs and safety unclear guidelines and policy regarding who client is and for whom SLP can provide care use of inconsistent terminology generic ax tools
26
family aphasia member of life impact (FAMLI) =
tool dev specifically to assess third party disability of family members of ppl w post-stroke aphasia first instrument based on experience of family members of PWA captured thru qualitative interviews w items based on the ICF and rigorously psychmetrically tested thru item response theory