9: Parenting and Disability Flashcards
(16 cards)
What is the definition of disability according to the Equality Act, 2010?
A disability is a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities.
Disability is a protected characteristic under the Equality Act, which includes various forms of impairments.
What are the two types of language used to describe individuals with disabilities?
Person-first language: ‘person with a disability’
Identity-first language: ‘disabled person’
The choice of language often depends on the specific community.
What percentage of UK children have Special Educational Needs and Disabilities (SEND)?
~18.2%
This indicates a significant number of children require support beyond standard curriculum provision.
What is the purpose of an Education, Health and Care Plan (EHCP)?
EHCPs are for pupils who need more support than is available through standard SEND support.
Only 4.8% of children with SEND receive EHCPs.
What are some factors associated with higher prevalence of SEND?
- Boys (though more women report disabilities in adulthood)
- Lower SES households
- Children with co-morbid impairments
- Mid-childhood onwards
This highlights demographic disparities in the prevalence of disabilities.
True or False: Parents of children with behavioral difficulties feel less blamed than those with other disabilities.
False
Broomhead (2013) found that parents of children with behavioral difficulties feel blamed more.
What is the medical model of disability?
Disability is viewed as a problem within the individual caused by biological or medical impairments, focusing on diagnosis, treatment, and fixing the problem.
This model emphasizes normal functioning as a measure of improvement.
Explain the transactional model of disability proposed by Sameroff (2013).
It emphasizes bi-directional interaction between parent, child, and environment, suggesting development is dynamic and continually changing.
This model incorporates both biological status and caregiving as predictors of developmental outcomes.
What are the main criticisms of the medical model of disability?
- Ignores context and social environment
- Can pathologize normal variation
These criticisms suggest a need for a broader understanding of disability.
What does the social model of disability emphasize?
Disability exists within society through physical, social, and conceptual barriers, not impairments.
It focuses on removing barriers to participation and promotes inclusivity.
How does the ecological systems model describe the influence of various systems on development?
It emphasizes multiple systems (family, school, healthcare, society) and their supportive or hindering roles in development.
This model encourages collaboration between different systems to support children with disabilities.
What emotional challenges do parents of children with disabilities often face?
- Navigating complex SEND pathways
- Feelings of blame, guilt, and stigma
- Experiencing lower mental wellbeing
These challenges can significantly impact the family’s overall experience.
What is a common paradox in parental experiences as described by Kearney et al. (2001)?
Parents live ‘between joy and sorrow’, experiencing love and pride alongside grief and stigma.
This highlights the complex emotional landscape of parenting a child with a disability.
Fill in the blank: The _______ model focuses on removing barriers in society to improve the lives of disabled individuals.
social
This model contrasts with the medical model, which focuses on the individual.
What protective factors can mediate the experiences of parents of children with disabilities?
- Availability of services
- Family and social support
- Effective coping mechanisms
These factors can help alleviate some of the burdens faced by these parents.
What do Coates & Howe (2022) suggest about parents of children in parasport pathways?
They felt more supported, experienced better mental wellbeing, and reported improved child independence.
This indicates the positive impact of community and support on parental experiences.
