Paediatric Sudden Death Flashcards
if a baby dies unexpectedly who must be informed?
procurator fiscal
police
how can support be given to families who have a child who has died first line?
support to engage with memory-making, memory boxes
second line support for families who arent coping with grief?
person centred
CBT
psychotherapy
complicated grief therapy
what is silent grief?
invalidation of loss
disenfranchised grief
not talking about it
how different is grieving of a baby’s death between mothers and fathers?
more intense
longer
who is at risk of SUDI?
premature babies
babies with comorbidities
what SHOULDN’T you do to prevent cot death
dont leave babies in car seats
dont sleep with baby
dont smoke around them
best sleeping method for babies up to 6 months
in a cot in parents room
let them sleep at the foot of the cot so they dont slide under a blanket
sleep on back
how should you discuss stopping CPR of a child to a family?
while cpr is going on, explain you have done everything you can and they havent responded to your efforts, what do THEY want to do
how should you explain to parents that a neonate is undergoing resuscitation
call them by THEIR name and not mum and dad
use the babys name
prepare them for what they will see if they agree to see their baby
if a baby stops breathing what should you do?
- give them a pat, usually on the nappy
2. ABC
what is personalised medicine?
testing clinical info to direct better treatment
what substance splices out introns to make mature mRNA?
mRNA
what drugs can read through stop codons?
gentamicin
what does ivecaftor do?
improves folding of the CF protein and its transport
