Week 9 P&L

Question 1

Examine the need for healthcare reform for people with intellectual disability.

Recall common co-occurring medical concerns for people with Down syndrome.

Explain the importance of using appropriate language when referring to, and speaking with, the person with Down syndrome.

Question 2

Healthcare stats specific to people with intellectual disability

Answer 2

• More than double rate of avoidable deaths
• Double ED/hospitals admissions
• Substantially higher rates of physical/medical conditions

Question 3

Three kinds of downs syndrome

Answer 3

1. Trisomy 21
2. Translocation
3. Mosaic (some typical, some atypical cells)

Question 4

Why is it important to look past a patient’s down syndrome?

Answer 4

• Sometimes, things can be attributed to down syndrome that shouldn’t be
• Therefore, being too myopic can lead to diagnostic error

Question 5

What are some more prevalent concerns during downs syndrome?

Answer 5

• Congenital heart defects
• Ear infections/obstructive hearing loss
• Thyroid disorders (hypo-/hyper-)

Question 6

Inclusive language tips for dealing with patients with down syndrome

Answer 6

• Person-first language (“person with down syndrome”)
• It’s a disability, not a disease
• Don’t use words like “normal” or “special”

Question 7

Components of effective communication with people w/ down syndrome

Answer 7

• Verbal
• Non verbal (incl gestures, facial features)
• Active Listening (give time to express thoughts)
• Check-ins (ensure they understand)
• Creating a relationship of trust and respect

Question 8

Barriers to effective communication w/ people w/ intellectual disability

Answer 8

• Physical barriers (e.g. mask)
• Social barriers (e.g. inappropriate use of words)
• Psychological barriers (e.g. bad past healthcare experiences)