Flashcards in Ethics-Pediatric End of Life Deck (13):
How many kids die each year? What are the common causes of death?
50,000 in US each year
Congenital and perinatal conditions
Acquired illness, neoplasms
What types of end of life discussions do you need to have with pediatric patients with progressive disease?
Withdrawal of support
aggressive symptom management only?
T/F Palliative care is the same as end of life or hospice care.
False. It is not the same. Different guidelines for children than for adults. Time of death is difficult to predict.
When does palliative care begin & end?
can begin at diagnosis & end at cure or death
**even after death, there should be palliative care for grieving family members.
Describe the integrative palliative & curative model.
initially cure or aggressive treatment is goal w/ consideration of the patient's quality of life.
there are also goals to relieve specific symptoms, such as pain.
eventually, you may have to address end of life issues.
T/F Foregoing life-sustaining treatment is not the same as making a choice to hasten the death of a child.
true. doctrine of double effect
T/F Physicians often give inadequate pain medication out of fear of hastening death.
Who might be a part of the palliative care team?
Child, family, parents’ employers, teachers, school staff, health care professionals, nurses, chaplains, bereavement counselors, social workers, primary care physicians, and consultants.
Should you have open & honest conversations with pediatric patients about their imminent death?
YEs, it is important to be open & honest.
What is respite care?
Provision of care to an ill child by qualified caregivers other than family members
T/F You should not allow parents to hold their children after death.
False. You should allow them to do this-a part of the grieving process.
What support is there for caregivers?
paid funeral leave